lichen planus14 messages in this subject.
|I too was very happy to find this site, it has been very helpful as i have olp and i have had it for at least 3 years and could not figure out for a long time what the problem was. I wear a top denture and thought that was the problem. when i found out for sure what i had i decided to try a natural remedy, I found a Pharmacist that also had a business of natural health. i talked to him and he prescribed a enzyme, called Bio-zyme by Integrative therapeutics, inc. I took about 3 months of the supplement and it seem to help and i ran out and so i picked up another brand, i have just started it a week ago, i am not sure it is going to help, but i figure it can't hurt. plus take a good B complex. I have an apt with a dermatology doc. and i am hoping for some help. mine is not as bad as some of the people i have read about here, and i feel for you as i know how stressful this all can be. but reading some of these letters- i am going to try some of their remedies and hope for results. and also i appreciate the information on some of the foods to eliminate from my diet. God bless all of you suffering with this. age 67|
|margie 7 August 12|
|Gengigel absolututely does work...the dental paste my dentist prescribed($40.00 for a tiny tube) did not work, it was nasty in the mouth and then I found gengigel(wonderful and soothing) ordered a couple more through Amazon. It heals the ulcers and there is no pain.|
|Kay Remington 6 August 12|
Regarding SLS free toothpastes, Holland and Barrat have a whole range of different ones at the moment of 'buy one get one half price' and really large sizes, good deal I think. I am still getting good results from Daktarin gel, with still no flare ups, so 2 weeks so far so good.
|Scottie 27 June 11|
Have had a really bad 2 weeks of bad Lichen Planus on inner cheeks. Started off with a sore throat which was the beginning of a cold, it really got to the stage where I needed to see doctor as not only did I have a bad throat, a cold and signs of a chest infection - the doctor prescribed Penicillin and a gel called Dakterin for the ulcers and the said the gel would stick to my inner cheeks and great results had been given re ulcers or Lichen Planus for this product. I have tried everything to keep it on my inner cheeks including holding a dry tissue in my mouth to stop saliva from wetting the gel until it sticks, third day and 10 trys and still not working, any one else out there tried this and got results? Doctor also told me to stop using my Betnesol while trying this Dakterin gel**Just another no-no I think for me, was doing great until I got the cold and sore throat as it always seem to trigger of bad ulcers for me so must say as immune system must be low this week, probably just more stuff for the bin that does not work! Possibly need to wait until cold goes away.
|Scottie 18 June 11|
As a sufferer of 10 years now with OLP I also have tried everything on the planet and take good advice from others on this great site and I will continue to try any advice given but so far only watching my diet ie for myself is eliminating anything I find that triggers off a reaction like citrus fruits, wine, boiling sweets, tomatoes at certain times of the year, any fruits ending with 'berry'some icecreams which always comes back to the fact that there is something I am putting in my mouth which is causing an allergy reaction as a lot of OLP is allergy related and what works for some is certainly not a cure for others althought the toothpaste without SLS definately helps. good to know that others get relief from steroids but steroids come with a price as Presnisidone is like a miracle at the time but can cause side effects like weight gain, I have avoided this one but I do use Betnesidol oral steroids which is used to swish around the mouth after brushing teeth 4 times daily, for myself it really does ease the pain and rawness on inner cheeks and makes life a bit bearable. I am always hoping that someone comes up with a cure that works for everyone out there.
Listening to others there is of course an immune problem that needs addressed and that is another issue, Vitamin B complex and iron seem to help folk also so it seems that we all are different and at the moment there is no miracle solution!!
|Scottie 31 May 11|
|ALL LP SUFFERERS PLEASE READ THIS !!|
My wife had been suffering from serious erosive LP for five long months.
The mouth/tongue ulcers were so bad, she could eat only warm soups, crushed
milky Weetabix and warm rice puddings. During this time, her weight
plummeted by three stone. During this five months of sheer hell, her doctor
prescribed Hydrocortisone 2.5mg muco-adhesive buccal tables, Betnesol 500
micrograms and Difflam Spray.
Upon waking up in the morning and attempting to speak, her ulcers would
"open up" and become increasingly painful as the day progressed. She was
unable to brush her teeth without experiencing considerable bleeding/pain
and also developed oral thrush which had to be eliminated with antibiotics.
Finally, after five months without respite, she was referred to a local
consultant oral and maxillofacial surgeon.
Upon visiting the hospital, her problem was deemed so severe, she was
immediately provided with a two week supply of steroids. She was advised at
this point, that the steroids could not be taken indefinitely. Within two
days of this steroid treatment, her ulcers had completely disappeared and
she was without pain for the first time in five months. After two weeks,
upon her follow-up visit to the consultant, she was then prescribed with
"Protopic 0.03%" Tacrolimus monohydrate 30g and was asked to gently rub this
into her inner cheeks twice a day. (Morning and night).
Within five days of applying "Protopic ointment", all ulcers had disappeared
and once again, she was completely without pain. Although I believe there
are considerable clinical trials taking place with this product, it has yet
to be approved by NICE for oral purposes. However, the consultant is happy
for the ointment to be applied indefinitely. The news gets even better as
there has been a further improvement. After only five weeks, my wife has now
found the need to apply the gel only once every night before going to bed.
It has been suggested by the consultant that she can attempt to reduce this
application even further as the weeks go by.
The same consultant surgeon has also recommended she uses "Kingfisher"
toothpaste which is devoid of alcohol.
Needless to say, my wife is delighted with the outcome.
|Rod 31 May 11|
|I was diagnosed with lichen planus in Oct of 10 by a oral surgeon. He gave me a gel for my mouth that actually says for external use only. The results have not been what I wanted. Mouth full of white bumps and tongue very sore and splitting down the middle. I went to a dermatologist last week and he confirmed the LP both in my mouth and now showing up on my legs and arms. He prescribed what i have now found out is "dukes magic mouthwash" it contains Nystat/dexameth/hydramin. It is absolutely wonderful. Just a few days after using my mouth is so much better. I swallowed for the first few days and it has helped even my legs. Because of the steroid it is recommended swish and spit. Pharmacy says because this is a compound drug not covered by insurances although it was about 26.00 for 250MI. I talked to someone I know who works in another location and she told me you can get them unmixed and buy the hydramine (benadryl) over the counter mix them yourself and insurance will then cover the rest of the ingredients at reduced cost. Although there is no cure for LP this is for sure some relief. Good luck to all with this disease, I know for a fact it is a pain!!|
|cherylg 3 May 11|
|I know of at least one person who has been using Gengigel to help with lichen planus, I have just read through the ípatient leafletí too, and it does specifically mention lichen planus as one of the conditions for which it can provide relief. If you want to try a break from the steroids, it is probably worth giving it a try.|
|Dom Walton 1 September 04|
|Dear Lichen Planus sufferers, the oral specialists tell me there is no known cause or cure for lp. It comes it goes and sometimes it stays. The only real control I have been able to exercise over the condition is the use of Novasone cream (cortisone). It is meant for topical external use but can be held in the mouth and expelled after a couple of minutes. It has proved to be very effective in neutralising tongue fissures, ulcers and general inflammation. It is a prescription medication and unfortunately also a steroid. Iím not happy using it long term but if youíve reached the end of your tether it may provide some relief. Good luck.|
|Rob 31 August 04|
|I have been diagnosed with Licen Planus and I suffer from ulcers and sore areas inside my cheek. I have this biopsied about 4 years ago, as very rarely, Lichen Planus can develop into cancer, and it was not a pleasant experience. Luckily, the results were clear, but I see the specialist every 6 months. I get ulcers regularly and have never found anything to clear them. At present I have ulcers in my throat which are excruciating. Donít know if this is related to the LP or not.|
|Val 11 August 04|
|Tom, many thanks for suggesting Gengigel, I will ask my dentist about it. Val|
|val 24 February 04|
|I would like to suggest you try Gengigel Gel for your lichen planus althought the professional version used by dentists would be even better. I know that the leading expert in the Uk, Dr. Christine Yoemans from Sheffield Dental Hospital has been using it in her clinic for treating lichen planus with some success. Gengigel is available from dentists and most supermarkets.|
|Tom 11 February 04|
|i never had lichen planus in my mouth but i did have it on the back of my hand for about 2 years, saw doctor twice about it then made appointment with consultant dermatologist- as soon as the appointment date came through the lichen planus literally disappeared overnight... weird huh? sorry this doesnt help you but get a to a specialist and you never know....|
|mr.benn 28 January 04|
|Does anyone suffer from lichen planus in the mouth. I get incredibly sore patches on my inside cheek and am worried about it developing into something nasty. I am being monitored by the hospital, but unfortunately dont see them when the patches are bad.|
|val 26 January 04|
lichen planus14 messages in this subject.