aches all over body with onset of ulcers

19 messages in this subject.

i suffered until I was 49, Until I stopped eating Gluten, Dairy, Eggs, and Soy. I then tried each food separately and found that Soy caused sores to come back. I continue to exclude these foods and a few others that make me feel unwell. I would sleep for two to three days and the illness would last for six days total upon which I would feel completely worn out.
Chris 17 July 14
Good to read your comments guys, I've suffered with mouth ulcers since I can remember and I have so many I'm in awful pain. This week in particular like you have mentioned my body is gone into shut down aches and pains and just exhausted ... I couldn't believe a new dentist I saw asked me was I severely immunocompromised ie cancer or HIV patient I'm only 32 I got such a shock he said the number of mouth ulcers and plaques were common in those patients !! I always worry there is more to mouth ulcers sometimes ...if anyone could recommend they're top medication I'd be grateful
Cheryl 20 December 13
It hurts! I suffered from mouth ulcers for approximately 10 years, then I had a dentist who recommended Amosan. They have now taken it off the market which is terrible as many people like me used it for many years and it really worked. The main thing I wanted to tell you is that I also thought I had the flu most of the time. Nobody believed me and I felt so bad all the time. After 25 years I was finally diagnosed with lupus (SLE). After being on the medication (Plaquenil, prednisone and an anti-inflammatory pill) for about 1 year, I could not believe how much better I was. I had also suffered from extreme back pain since I was 24 and it was so much better. So many of the things I had been suffering from were better I could not believe it. PLEASE, go to a rheumatologist and have them check you for lupus or many other similar auto immune diseases. By the way, part of the problem I had for being diagnosed was that I did not and still do not have a classic blood test. I had to get so bad that they finally diagnosed me from the symptoms. This happens to many people, but lupus is much more recognized now than it was then. I was diagnosed 18 years ago. Things are better now, but it is still hard to get diagnosed when you have an auto-immune disease. Don't give up, keep trying, it is important. Good luck and all my best wishes to you and all the others that I see on this board.
Sharon 19 May 11
There is a tip on here that recommends taking a spoonful of Andrews Salts in glass of water and that will neutralise the acid in your mouth and stomach and hopefully stop the ulcers.
Lechef 18 March 11
Hi i suffered from mouth ulsers for several months. They came on without any apparrent reason, i used lots of treatments and constant trips to docs for test. All test clear and no reason offered by doc until i suddenly got heartburn and acid coming into my mouth i suggested to doc they msy be linked and was treated for acid refux and the ulsers began to disappear. I hope this post helps someone as i know how bad ulsers are
ste 18 March 11
I was recently diagnosed with a viral infection, had a fever, aches, pains and my skin was sensitive to touch, and also have a mouthful of ulcers, i have never suffered with mouth ulcers before, only one on the very odd occassion. I have ulcers on the roof of my mouth, back of my throat, tongue and lips. It has been so painful, i havent been able to clean my teeth, eat or sleep very well. Although after 11 days i am feeling a lot better, i am still continuing to get new ulcers and still have aches and pains. The glands in my neck are very swollen - do you think i could just have a virus or are the aches and pains related to the mouth ulcers. I have been told that i may be lacking vitamins b & c, plus folic acid. Can anyone advise if having mouth ulcers is some sort of condition?!
Many thanks
Lisa 30 November 10
If you have flu-like symptoms, I would say it is definitely something far more serious than just mouth ulcers. I am currently being tested for vitamin deficiency, autoimmune disorders and goodness knows what else. I know that autoimmune disorders can cause flu-like symptoms. They can also cause bunches of canker sores, skin rashes....look them up! My advice is to keep going to the doctor until you get bloodwork done and someone who will consider the possibility that they're more than just mouth ulcers.

I hope you guys find the help you need.
Jess 24 February 10
Hi

I too used to suffer from constant mouth ulcers and throat ulcers even as a child. What I have linked mine to is an intolerance to citric fruits orange lemon etc even if taken in squash. I dont suffer now unless I forget and take a glass of squash and hey presto they appear.
Joanne 29 January 10
sounds like you may have SLE (lupus)
chris 29 January 10
i went and saw the doctor. they did not really take me seriously about how much my body hurts and aches with the ulcers. i got some steriod pills to take but its impossible to use if the ulcers are on my tongue. she did say hiv is mostly likely not the cause of the ulcers and didnt say it needed ruling out like the last doctor.
I am so sick of doctors atm, they hardly help at all!
It hurts! 27 July 08
i am seeing a (not my as i dont have one i can see easily all the time) GP this friday.
I feel very tired and achey right now. yes it hurts in my body it aches and i feel sore all over. last time a doctor said it sjust the side affects from my body fighting the infection makes it like flu like aches and pains.
I hope i get some help. that doc also told me they would need to test for HIV and she seemed to give impression that thats all they can do - rule HIV out. I havent wanted to go back but I realised that omg i had this last month also, the frequency and severity of the ulcer attacks are getting worse and worse. Not so much the ulcers but the aches and pains.
I dont have much faith in doctors,i really think i need to try a herbalist or naturapath also
It hurts 22 July 08
It hurts!, I suggest you get a referral to a maxillo-facial surgeon (the specialty who deal with mouth ulcers) from your GP. Privately, you could arrange to see Crispian Scully, who has expertise in ulcers though appointments with him are not cheap. http://www.homepages.ucl.ac.uk/~sfhvcms/ If you call (0)20 7915 1000 and ask to make an appointment with him. On the NHS you should be able to see a maxillo-facial surgeon anyway, though their understanding of mouth ulcers is variable though better than most GPs.

If you are having ongoing flu like symptoms and ulcers over a long period of time, you need it sorting out.
Find a solution 19 July 08
I'm so sorry to hear how awful you feel when you have an ulcer attack. I tend to feel really weary, the constant pain seems to drag me down, and all I want to do is curl up and stay in bed. Don't know if its an actual symptom, or whether its just the constant pain that causes it. I've been taking 1000mg of L lysine every day , and using a SLS-free toothpaste since getting the tips on this site, and they definitely do help....well they help me, anyway. We all know that nothing helps everybody !
Stella M. 19 July 08
i too get bad flu like symptoms. i had them last month and now a month later.
doctors arent very helpful. i am so hurting all over my body it is horrible and i want to cry. feel like i have a flu . and now my throat is also sore. had these ulcers start up about 1.5 weeks ago, flu symptomsgetting gradually worse.until today where i feel it is so painful to move and do anything. throat sore like heck now, for a few days.
had mouth ulcers for years but the reactions my body has are getting worse.
the flu like symptoms are so bad now.
i am feeling quite desperate about it.
It hurts! 18 July 08
The correct spelling is Colchicine. Itís sort of tricky!

Let me know if it helps!
Betty Boop 14 March 05
Noreen, try Berocca by Roche! Like you I have suffered all my life - Iím 35 years old - and finally I have found some thing that keeps these awful ulcers, aches and pains away! I take soluable Berocca on a daily basis. Berocca can be bought from Chemists and supermarkets and contains reasonably high levels of vitamin Bís etc. The soluable one is by far the best. Do try this it has been the only thing to have helped me and like you Iíve spent years battling with them too. Thanks to Berocca I have had six months of ulcer-free bliss - the only six months in my life without them!!!! I donít need to tell you how good that feels. As a result I have far more energy and happiness. Good luck and let me know if you have the same success.
Plum 14 March 05
cochicine???
jennifer 12 March 05
look for betty boops entry with colichine...
jennifer 12 March 05
i am 52 years old and have had ulcers all my life.i used to think my pain and agony with them was unique to me until i discovered this webite today.reading the messages has been a great support. thanks to all who went to bother ofsharing their experiences. i am a teacher and recently have changed jobs because i could no longer cope. the ulcers do not visit quite so often now .when they do my entire body seems to shut down and i have to go to bed for a day or two.i seem to experience flu like symptoms.at the moment i am weary of new products and theories having tried so many.as last attempt i visited the ulcer shop and i decided to try some of the recommended products.today im at home in bed nursing new visitors. they too will eventually go.
noreen 10 March 05

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aches all over body with onset of ulcers

19 messages in this subject.