Coeliac disease caused my chronic mouth ulcers

7 messages in this subject.

I really hope this will be the answer for me. Iíve been getting ulcers in my throat for the past 3 months. Soon as some heal more start. Iíve had blood tests and swabs but nothing is showing up. The only relief Iíve had is by gargling with crushed steroid tablets. It clears them up but itís definitely not a long term solution. Iíve been so depressed over this and it gives me anxiety. I canít help but think something is seriously wrong with me. Why else would I be getting them this bad? At one point I had 9 in my throat. It was excruciatingly painful! Thatís when the doctor finally gave me the steroid tablets. Iím going to see her again today and ask for a test to check if I have coeliac disease. Otherwise itís a biopsy.
Amanda 14 March 19
Can not believe I found this thread - so glad I did - I have suffered for at least 18 years with constant mouth ulcers - seen many doctors/dentist and tried 100's of products (probably spent a fortune on them!) I am giving up gluten from this minute on - thank you for posting this as no doctor ever mentioned gluten as being a possible cause!!!
Amanda 19 August 15
Hi - That's great news. I've had Ulcers for 20 years, had lots of tests. I am allergic to Cinnamon and Sodium Benzoate, don't eat chocolate, crisps, frizzy drinks etc .. the list goes on.

...I went to the doctors today to get tested for Celiac disease .. so need to wait 7 days. It'll be interesting to see what it shows.

I do get them really bad - all the time, lots at the side of my tongue. About a year ago I got a gum shield from the dentists made - that made a huge difference, maybe 80% less ulcers - but the ones I do get are mentally sore. My reasoning for asking the dentists was that many were on the side of my tongue and I think when my mouth got inflamed I was biting my tongue during the night.

I'll let you know how the test goes.
Derek 14 August 15
Hi,
I'm not sure if anyone reads this thread still- but wanted to update it 3 years on.
I haven't had a single ulcer since being on a gluten free diet.
Coeliac disease caused my mouth ulcers and I advise everyone to be tested.
I can't believe how much I used to suffer with them, feels like a lifetime ago.
Xxx
sophie hill 5 August 15
I have had another ulcer attack since posting my last post. I assume it is because my body is still healing or that I have accidentally eaten gluten through ignorance or cross contamination (still living with the bread loving parents).
Would anyone agree that those two factors may have given me this repeated ulcer attack? I was ulcer free for nearly a month, which for me, was something very special.
Any help/advice would be greatly appreciated. Sophie.
Sophie Hill 6 August 12
This is a very helpful post.
Recurring mouth ulcers should be, and in many countries are, the reason for testing for coeliac disease.
Anyone here, people regularly suffering from mouth ulcers, MUST ask for these tests. A simple blood test can rule out the coeliac disease, only biopsy and diet can confirm it (and not blood tests alone, as stated in the previous post).
Coeliac disease is a serious thing and it's incredibly important to have it diagnosed. Untreated disease can lead to serious complications and other diseases (including cancer). Gluten-free diet may save your life and free you from mouth ulcers - but get tested first!
Good luck everyone.
scotianka 22 July 12
I'm 26 and I don't normally write on these forums, however I wish to offer some help for people with continuous mouth ulcers.
I suffered from continuous ulcers on my tongue for about ten months. I went for lots of blood tests and to the hospital and dentist, yet they kept saying that the cause for these chronic tongue ulcers must be stress or a phase.
They kept saying they were just recurrent canker sores and presribed me numourus medications which I would get through in a week. Nothing really worked.
This left me feeling so down and helpless. I was in pain nearly everyday and so moody. I had been on so many websites trying to find reasons for them as I felt healthy and well in myself (apart from being lazy/tired). I didn't agree that I was just one of those people who get ulcers. The thing is, if a person keeps getting ulcers like I did (which was every single day), then that means the body is attacking something which means ulcers appear.
Anyway I then read that Coeliac disease sometimes causes mouth ulcers. I told my doctor to test me for this even though she was reluctant to. Last week my bloods come back as postive for the antibodies which meant I had Coeliac disease. My immune system attacked my small intestine everytime I consumed anything containing gluten.
My first thought was pure relief. There was finally a reason to these ulcers, which were destroying my life.
I stopped eating gluten that very day and I have had no ulcers since then, which is the longest time I have been ulcer free in ten months. I can't explain how amazing it is to know that I won't have that pain again. I think anyone who has recurrent mouth ulcers should ask for a Coeliac blood test. In order for your test to be most effective, don't stop eating gluten until you have been confirmed a Coeliac.
My relationship with food has changed dramatically, I miss eating alot of food. But this diet is truly amazing. I feel happier, more energise, more awake and free from ulcers. This disease can only be a good thing for my health (providing I never eat gluten ever again). The thing is, we are consuming way too much rubbish as it is, and although gluten is generally natural, we consume way too much of it as it's in nearly all processed foods.
Sorry I have written so much, I feel I have reached some sort of enlightenment when it comes to my health.
I have also 'suffered' from an underactive thyroid gland since I was 11. But this, I feel, has not effected anything throughout my life. However this thyroid diseases do often go hand in hand with other auto-immune diseases, such as coeliac disease. Oh and another perk of the gluten free diet is that you lose lots of unhealthy weight but maintain strong, healthy and happy.
Good luck everyone and hang in there. Be persistent with your doctors, as only you can truly empathise with your condition, they obviously care but I feel that they never understand the true effects of ulcers if they don't suffer from them.
Get tested for everything because it has to be something. Take care x
Sophie Hill 10 July 12

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Coeliac disease caused my chronic mouth ulcers

7 messages in this subject.