Fluticasone / Flixonase

16 messages in this subject.

I was diagnosed with OLP six mo this ago with a biopsy. I was given prednisolone mouthwash which did help. Then prednisolone tablets were added which cleared up the olp on ,y lips but not the fo guy and cheeks. On visited the Eastman dental hospital I was prescribed ed Flixonase mouthwash to use twice daily and this seems to be making it worse. I was also give Dermovate cream to mix with Urabase and this burnt my lips. I did not use it on my tongue or cheeks and have a appointment at the hospital next week to discus the problems. I was told that Flixonase is the strongest thing they have.
Iíve been offered a drug called Hrdroxychloroquine which is an anti-malarial drug. It can cause damage to the retina of the eyes with long term or high doses so I really donít feel like agreeing to try it.
It takes three months to work anyway.
Has anyone had this drug?
Chris Rickards September 11th
Christine arickards 11 September 18
I have also been put on using Flixonase as a mouthwash for lichen planus but only 5-6 drops in water(Half a capsule) which seems very weak to me. Most people seem to use a whole capsule.
Edward 9 April 17
EB,
If you have the Flixonase spray, you have to spray twice onto the ulcer and don't drink or eat for half an hour after. If you have the Flixonase nasules, you have to tear them apart and squeeze the fluid into a glass and add a tiny bit of water to it, then use it as a mouth wash and rinse it for at least 3 minutes inside your mouth and then spit it out, don't eat and drink for half an hour after. Do this 3 times a day.

-Rob
Rob 3 December 16
Using Flixonase as a mouthwash How do you do it? Can I just spray it on to my gums ?
EB 3 December 16
I have MMP and only just begun Flixonase after trying other things. I did use OraMd which you can buy on Amazon comes from states. It is entirely herbal, blend of 3 essential oils. After using drops on toothbrush etc. as directed online my blisters disappeared in 48 hours. HOWEVER it does not get rid of something deep like MMP. The dermatologist says you have to use something stronger to get right at the root of the problem. I use that and Flixonase mouthwash. But OraMd may help others with lesser problems. Any MMP people out there in UK look at PEM Friends meet others with MMP.
B. Ellis 28 March 15
hi ali above to your question ive been on these flixonase for 3 weeks from dental hospital and so far am finding my gums are 80% better in the inflamation.so happy after 3 yrs of mmp .but the gp refuse to give me another scritp for them day not allowed so getting into the dental hospital is not easy for a appointment and i have 3 days supply.dont know where to go now and scared it will get worse without them any ideas.
shirley 2 February 15
Just to update you I have been using with the stuff for 2 weeks and its worked. Ulcers went and no new ones have come along. Please bear with this treatment.
laura 27 January 15
hi ive just been given flixonase to use as a mouth wash by the dental hospital in birmingham.after suffering mouth blisters for 3 yrs very difficult to wear my dentures its agony putting the presure on my sore inflamed gums.i cannot eat much.ive had a biopsy last yr for mucus menbrane but came back inconclusive also every blood test available nothing.they want to do another one but i refuse to go through that again it was awfull.dont think theres any cure im 62 and feel like this is for life now.its so lowering.just hope this mouthwash will inprove dont give out much hope like the rest of you keep bearing up.
shirley 13 January 15
I have recurring mouth ulcers and the Eastman hospital have prescribed the flixonase nasules to be taken 1x day in 10-15 mls of water for 8 weeks. You hold it in your mouth and spit it out after 3-5 so it stays in contact with the ulcers. I am on day three and am waiting to see if it is helpful as new ulcer is starting. Consultant says stress may be causing the ulcers in my case as there is no obvious reason why I should keep getting them.
laura 12 January 15
Hi all
I have had lichen planus in my mouth now for tens years and tried everything to get rid of it to no avail. I have been to the Eastman hospital many times until I stopped going due to the fact I saw a different person each time with no helpful advise or treatment at all. For the last three months I have been using flixonase as a mouth wash two to three times a day( do not swallow just rinse for 3-5 mins). Initially I thought it had improved my mouth but several days ago my mouth became worse than ever. Not only increased lichen planus on my inner cheeks but tongue ulcers and a very sore tongue! I have stopped taking the flixonase and I am going to the royal Berkshire on Thursday to discuss going back on 5mls of steroids daily as a mouth wash as this has proved over the years to contain the lichen planus. Having just read on a web site about the use of xylitol derived from birch as a possible treatment I intend to hot foot it into town to buy some and see if that helps. Will keep in touch to let you all know how I get on. Wish me luck!!??
Barbara Myles 12 November 14
hi ali
it has been shown that fluticasone nasules do help treat oral ulceration, by helping to reduce the inflammation and thus relieve the patient from pain.
anon 9 September 14
Just to add I don't actually have mouth ulcers but a very painful swelling and soreness in the mouth. I've had this problem for 4 years, been passed from doctors to dentists and back again. My symptoms according to what I've seen on the internet correspond to mercury contamination but no one seems to be able to confirm that
Trudi Lee 16 January 14
Dear All Robinson
By coincidence, or not, I also had an appointment with a "specialist" at the JR Oxford and I've been given Flixonase for use as a mouth wash. I'm also concerned about this and I was wondering if you get to read this message is whether it actually helped you eventually? Also how did you get on at Eastman?
Trudi Lee 16 January 14
Ali, the instruction on medicines that say not "take by mouth" is about not actively ingesting it through your mouth into your gut where it can be absorbed systemically. You are meant to apply this solution TOPICALLY (which means on the surface) on an ulcer which happens to be inside your mouth. Not sure why that's confusing but there you have it. Hope that sets your mind at ease
Dr V 31 October 13
Well, I'm back, I've been trying this new Flixonase stuff for a month now, in which time I have had several HUGE ulcers, biggest one being on my lip at the moment, absolute killer!
aaaanyway, I've been really good and tried everything they've told me to do with this stuff and to be honest I thought I'd found a cure to start with, I had an ulcer for 3 weeks, came home from hospital, tried this stuff, after a few days it had gone. Then a couple of days later I had another one, grew to the size of a 5p. This stuff didn't even touch it. had a few since then as well and it hasn't done a thing. Looks like I'm off to London Eastman Dental Hospital!

Good Luck All!
Ali Robinson 18 September 11
Hi All
Just been to see my specialist in Oxford. They've given me one more treatment to try before sending me off to London to see somebody another specialist at the Eastman Dental Hospital.
I was just wondering if anybody had tried this treatment that I've been given; Fluticasone / Flixonase. It says Nasule drops on the box but on the leaflet given to me it says: Dissolve in 10-15ml of water and use to rinse THREE times a day for EIGHT weeks as directed. NOT TO BE TAKEN BY MOUTH.
I don't understand, it says NOT TO BE TAKEN BY MOUTH in bold capitals but I'm supposed to be using it in my mouth.... Hopefully somebody else has come across this stuff before. I also hope somebody has found this to help a lot too!!

Look forward to hearing from you.

Ali Robinson 16 August 11

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Fluticasone / Flixonase

16 messages in this subject.