 FOUND ADCORTYL 50 messages in this subject
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Found it! You have to buy from NZ and it costs £7 per tube, but it is worth it!
http://www.healthchemist.co.nz/product/kenalog-in-orabase-5g-p253790.html
It is a pharmacy product over there so they will email you to check you are going to use it correctly before use.
Dom - do we know why it was discontinued? If not for a medical reason, could we put some sort of petition to Squibb?
Kate |
| Kate 11 November 09 |
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| Will let you know if it gets delivered obviously! |
| Kate 12 November 09 |
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Thank you Kate, yes, let us know if it arrives! Why is it discontinued? Who knows? A few years back when I was trying to wangle a way of getting it for the shop, I tried get some sense from Squibb, Adcortyl didn't even have a product manager assigned to it - that's how important it was to them.
Trying to get hold of many products is so difficult, it defies logic. |
| Dom Walton 12 November 09 |
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Maybe we should use the powers of the masses to get some sort of answer?!
I am also off to the States in 10 days, so will check out availability there. |
| Kate 12 November 09 |
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My cousin works in medicine and sent me this letter from Squibb who make the product. It was removed due to cost!
04 March 2009
Dear Sir/Madam
Adcortyl™ in Orabase™ 0.1% (Triamcinolone Acetonide in Oral Paste) 10g Discontinuation UK
Bristol-Myers Squibb Pharmaceuticals Ltd regrets to inform you that Adcortyl™ in Orabase™ 0.1% (Triamcinolone Acetonide in Oral Paste) 10g will be discontinued by 31-March-2009 or when current stock is exhausted.
The appropriate authorities have been informed.
Please note that Adcortyl™ in Orabase™ for Mouth Ulcers (Triamcinolone Acetonide in Oromucosal Paste) 5g (P) will remain available through B-MS.
Could you please include this information in the next issue of your publication or notifications to your customers.
For medical-related questions, please contact our Medical Information Department on 0800 731 1736.
Yours faithfully
Medical Information
Bristol-Myers Squibb Pharmaceuticals Ltd |
| TK 24 November 09 |
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| Phoned Squibb who have withdrawn it from Europe - seems to be cost not medical but not very helpful re finding it again. Thanks for the tip re NZ |
| Aileen 11 January 10 |
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| Thanks for this v helpful information - I have been using Orabase for 20 years and was very concerned to be told by the chemist that it was not longer available. Do we know what "available through B-MS" means? |
| celia 13 January 10 |
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| I would love to hear if Kate has now received her supply from N.Z. I also will check out U.S.A in March. |
| Eileen 14 January 10 14 January 10 |
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| I have just found a site on the web that sells something that is similer to Adcortyl it is called Kenalog in orabase, it is on the lifepluspharmacy.com I will post another message when it arrives, and if it is as good as adcortyl. It is about £9 a tube, but if it works them it will be worth it. Will let you all know. |
| Barbara 14 january 2010 14 January 10 |
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| suffering with bad mouth ulcers on a regular basis ,adcortyl was the only treatment that worked.has anyone managed to get some recently and from where? |
| keith/north wales UK 18 january 2010 19 January 10 |
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| Had this stuff rom my gp a couple of years back and it was great. Been all round Manchester for the stuff, cannot find it. I have had a big flare up and am stuck with stupid lidocaine gels that sting like hell when I apply them and last about 20 mins, and tahts just numbing the ulcer its self..no effect on the pain from the swelling my neck or jaw and no relief from the ear ache. absolutely gutted. Going to try my local pharmacy in the hope they have some. |
| Heather 21 January 10 |
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| Adcortyl is definitely the best, have been using it for 40 yrs now. HOWEVER approx 1.5 yrs ago I changed my diet & started to eat more fruit. I started eating 2 apples per day & it seemed to work like a miracle. Not sure if it was the apples buts thats all I changed. It's worth a try.. It has to be regular,, every day, as I sometime i.e. holidays break the habit & I get really nasty ulcers again.. I still get the very odd one but it's nothing in comparison to what it was like.. I still keep the emergency tube in the bathroom, now it appears to have gone off the market. TRY THE APPLES,, TRY THE APPLES + as much fruit as you can get your hand on,, not Oranges but no proof !! Good luck |
| Matt 27 January 10 |
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Dear
My colleague David Veitch has forwarded the mail that you sent concerning the Withdrwal of Adcortyl in Orabase
I understand your concerns and disappointment that BMS has made the decision to discontinue the manufacturing and distribution of Adcortyl in Orabase , and the impact this is having on patients suffering of mouth ulcers.
When discontinuing BMS products , we follow a procedure of informing a number of key stakeholders .
-Notifications were sent to MHRA in June 2008 and July 2009 , to the NHS , British National formulary , Mims , Pharmaceuticals journals.
-All Doctors , pharmmacists , patients who contacted us for information receive a formal response from our medical information department
As this is a global BMS decision , we are not considering to restart the production , and we will not be able to find an alternative source of supply in BMS
However, we have been approached by a few companies which are interesting in manufacturing and selling Adcortyl . This is being handled by our divestiture team in the US . I have requested this team to keep us up to date on the progress they are making
We have checked if similar products were still available outside of the UK , and we have found that the company Sigma in Australia /NZ and the company Taro in USA/Canada have products that are similar to Adcortyl
We understand that the company IDIS may be in a position to supply these similar producst on a named patients basis .
IDIS contact are as follows:
Idis House
Churchfield Road
Weybridge
KT13 8DB
Again , I understand your concerns , and I hope that this answer is addressing your specific request
Do not hesitate to contact me if you need further information
Yours sincerely
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| Rob 28 January 10 |
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http://www.idispharma.com/patients.php .....
'Idis is a company that connects physicians and pharmacists to pharmaceutical and biotech companies to create access to drugs that are not available to patients on prescription, for example named patient medicines, for various reasons including the drug has not yet been licensed or it has been discontinued'
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| Lulu in Hackney 1 February 10 |
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| My daughter and myself need to find a supply of Adcortyl in Orabase, as it is the ONLY product on the market currently which works to heal and stop the pain of mouth ulcers. The only other product, available from Helios Pharmacy is Myrrh tincture which also helps with healing and pain relief for mouth ulcers. |
| Janine Parkinson 2 February 10 |
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My doctor said that Man med are making a substitute. I e-mailed and this seems to be true. Was told Your doctor can contact them on 01296 394142.
manmed@bucksnet.co.uk |
| Manmed Hunter, East Sussex 6 February 10 |
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| I think I may have found a pharmacy which still has some in stock! I've ordered a few tubes this morning so fingers crossed it's all legit. http://www.walthampharmacy.com/shop/customer/product.php?productid=2421&cat=0&page=1 |
| David Daley 10 February 10 |
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| Just an update: the Waltham Pharmacy referred to in the above post is legit. My tubes arrived on Sat and made my weekend. Best Valentines present ever! |
| David Daley 15 February 10 |
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| Thanks David for this info. I have also ordered from Waltham Pharmacy. |
| Glyn King 17 February 10 |
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| Thanks David. I have also just ordered some from Waltham Pharmacy. |
| Sarah Evans 22 February 10 |
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| Thank you David. I too have just ordered some from Waltham Pharmacy. How could Squibbs have been that shortsighted? No wonder this country is in a financial mess. |
| Hilary 22 February 10 |
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Thank you David! Suffered for 30 years, getting worse by the year and I was in tears in the pharmacy when they said it had been discontinued. At least this order will help until hopefully they sort out alternative manufacturer.
ps what was the use before date on your tubes? |
| Zoe H 25 February 10 |
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| Thanks for spotting Waltham Pharmacy - ordered two tubes on Sat, arrived today. Bit pricey at £9.80, but when you know something works so well, it's more than worth it. Stocks are limited, so get in while in lasts. Waltham's are based in Grimsby apparently. |
| Robin H 25 February 10 |
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| PS To respond to early question from Zoe H, use by date on tubes is 2013. |
| Robin H 25 February 10 |
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| This site has been so helpful. Been to local Boots stores and other chemists in West Sussex area. And no ADCORTYL in shops at all they just say it has been discontinued.! Help I am now sending off for some from Walthfam Pharmacy, here's hoping they have some left in stock! |
| Sue H 26 February 10 |
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Hi everyone,
I posted this in the big thread but thought I'd it here as well. As per posts above I have recieved adcortyl from waltham, but obviously this source isn't going to last forever. But here is another possibility for you: a product called Oracort. I haven't used it in anger yet, but it has the exact same active ingredient as Adcortyl, in the same concentration, in the same carrier gel. I don't think you can get it in the UK, but I successfully recieved an order from Drugstorchemist.com in NZ. It's made in Canada, even has the same expiry date as the final batches of Adortyl - 2013. |
| Micky 27 February 10 |
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| got some this morning from waltham 2 tubes ordered sat |
| judy 4 March 10 |
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Thank you David. Waltham Pharmacy still have stocks as I was able to order successfully 2 tubes this morning.
I am going to check out Hong Kong and will post any further information. I agree with Hilary (Feb) it is a disgrace to discontinue such a brilliant product on a cost basis, we sufferers would pay anything for the relief it brings. |
| Sue Lane 15 March 15 March 10 |
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Thank you guys so much for the advise above. ordered some tubes today to stock up
Many thanks
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| Tubbstar 21 April 10 |
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| Cant find Adcortyl on the Waltham pharmacy website ! Had to resort to tring the NZ website mentioned at the start of this string. Any news about other manufacturers taking up the manufacture of adcortyl? Like everyone else, I used to rely on adcortyl and was completely gutted when I was told it was discontinued... |
| Marcus 28 April 10 |
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| Sadly Waltham pharmacy have run out! Have just ordered 2 tubes of Oracort from drugstorechemist.com, based in NZ (Thanks Micky!) Cost of £4.27 per tube of 5mg Triamcinolone Acetonide 0.1% which is exactly same as Adcortyl in Orabase. Postage was £4.80. It all seemed very easy so am hopeful delivery will be the same. Will advise when arrive and pray it will be as good as Adcortyl! Have just tried to survive 2 massive ulcers and ended up taking time off work as pain, glands, and feeling sick really bad! Nothing else recommended by pharmist, doctor or dentist works! |
| Amalou 1 May 10 |
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Hi
I've been suffering for mouth ulcers all my life and have been using Adcortyl in Orabase for over 10 years. I was worried when it went off the market but I finally found a way to get it. It can be made up specially by 'Cardinal Health' in the UK. What's more, I got a 30g tube, which is 3x bigger then the tube I could usually get in Ireland (10g) and I think it was sold as 5g in the UK. So this should last me a long time. But here is the catch people - it is very expensive. I was charge over €200 for the tube [yes, TWO HUNDRED Euro!] And my local pharmacy (who ordered it in from UK to IRL did not charge any margin. That represents an 1000%+ mark up on the old price (gram for gram). But as we mouth ulcer sufferers know, Adcortyl in Orabase is worth every cent (or penny!). So yes it is complete extortion but still worth it. This has encouraged me to try natural preventative measures. I'll try the apples Matt ;) I'm also trying salt & water every day as a preventative measure. If more people demand it, maybe BM Squibb will do a U Turn. It seem odd that they would discontinue a product many of us would pay any amount to get. |
| Neil 4 May 10 |
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Hi
It is very difficult to get Kenalog without a prescription. Have been able to buy ORACORT in Barbados which is made in Israel. Find a friend there to ship it for you as it is cheaper than tubes from New Zealand. |
| Chris 7 May 10 |
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Hi
Found this info really helpful have been using Adcortyl for years! I have just ordered some kenalog from NZ i hope it is as good as Adcortyl. |
| Nicky 13 May 10 |
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| It's about 4.50 pounds from Drugstorechemist.com per tube of oracort and that's about the cost of the freight too. |
| Frances 23 May 10 |
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Chris (7 May 10)
Please could you tell me if ORACORT works as effectively for you as adcortyl. My in laws live in Barbados so I can get them to bring some over when they come next month. Does it really have the same active ingredient?
Many thanks |
| Jo 11 June 10 |
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I have just purchased some Trinolone Oral Paste, in Thailand from a pharmacy, ingredients: Triamcinolone Acetonide in Dental Paste. This appears to be the same as Adcortyl, although I have yet to try it I am still squeezing the last out of the Adcortyl tube. When I do use it I will post. PS It cost 180 baht approx. £3.75
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| Chrissie 5 July 10 |
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Jo(11 June)
Absolutely works although it does have a slightly stronger taste. Is also available in Israel across counter as a friend brought me 2 tubes when visiting |
| Chris 21 July 10 |
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Hey! Have just found Trinolone on ebay and no restriction on quantities it seems. Originates from Thailand but seems to come from Au site
http://cgi.ebay.com.au/Trinolone-Oral-Paste-5-g-/170477671990
6 tubes cost £32! |
| Chris 21 July 10 |
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| Chris does Trinolone work aswell as adcortyl? If so i'll get some. Gutted they don't sell this stuff anymore. Makes life a misery when you can feel an Ulcer coming on and there's nothing you can do to stop it |
| Jamie 11 August 10 |
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| Does anyone know if Kenalog works? Also how difficult is it to get from Healthchemist in New Zealand? |
| Michael 16 August 10 |
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| i've used kenalog since visiting this site a year ago, it saved my life, absolutely works! |
| Laura, Sydney 17 August 10 |
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| Just found this website with all the comments about Adcortyl in Orabase being discontinued. Have just spoken to BMS and it is unbelievable that they don't seem interested in re-marketing the product. Bet they would change their minds if the management suffered with mouth ulcers! Have found all your comments really helpful as will run out of my last tube of Adcortyl soon. Thanks! |
| Alison, UK 24 August 10 |
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| If u get a prescription like me you can get adcortyl on chemist direct |
| Adam 25 August 10 |
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| Hi, i too suffer with horrendous mouth ulcers, but my dentist gives me the pescription for Adcortyl, might be worth asking yr own x |
| Michelle. UK 25 August 10 |
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| Adam and/or Michelle, do let us know if they really can get hold of it! |
| Dom Walton 25 August 10 |
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just got iglu in the post gonna see if that works...just about to send off my prescription in the post to Chemist direct
! |
| Adam 26 August 10 |
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| Iglu does not appear to have the same chemical composition as adcortyl and does not have the same sticking power .I always applied adcortyl at night and it stuck like glue to the affected area.Unfortunately the same cannot be said of Iglu.However,it does seem to ease the pain and 3wks into the ulcer it has contracted ,compared to the ave six (without any treatment save mouthwash) it does seem to work to an extent.The pharmacist at my local major Boots says that the company are attempting to re-stock it so that they must be applying pressure to the manufacturer to start up production again.Adcortyl is the best product I have ever used for my mouth ulcers and Ive had them since childhood and am now 48! |
| paul,southampton (ENG) 31 August 10 |
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| I'll have to follow some of these leads up. I'm in a bad way at the moment with a sore about the size of the old half pence - and no Adcortyl in Orabase to put on it. I've been trying the Corlan, but it really doesn't do much for me, and holding a gritty tablet near a sore can hurt. In any case, I wonder whether it's the orobase stuff that does the good work by protecting the area rather than the steroid. Does anyone have a source of a dental paste with no medication in it? Do pharmacists stock this kind of thing? I've never asked one, but they may have a source... |
| Gavin 3 September 10 |
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| My dentist [from Sweden] recommended Oral B Zendium toothpaste. The important ingredient is Zendium. Typically, it's not available in the UK market but I buy during occasional trips to Scandinavia. It's not as good as the old Adcortyl in Orabase but does work. |
| William Chubb 3 September 10 |
