 Gluten allergy may be cause for continued mouth ulcers 45 messages in this subject
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| I suffered in my teens terribly from mouth ulcers. I chanced upon a friend who told me that he too had terrible ulcers until he himself heard from his friend who also suffered from them that he went to have a blood test which showed that he was allergic to gluten. He stopped eating all products with gluten in and they disappeared! My friend went and had this blood test and he too was found to be allergic to gluten. He too stopped eating all foods with gluten in and has not suffered from mouth ulcers since! I tried a gluten free diet, but it did not help! I thought this bit of information might be usefull to someone and I'd love to hear any comments on this! (dovidrutenberg@yahoo.co.uk) |
| David Rutenberg 30 March 08 |
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| I myself also suffer from mouth ulcers currently trying a gluten free diet. |
| kj 30 May 08 |
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Last year I went on a carb free diet (which excluded wheat products, obviously) and I didn't get one ulcer in months. Of course, I lapsed and now eat wheat again but having been a sufferer for years ( I can barely speak or eat at the moment), I can't put the respite from ulcers down to anything else. I wish I was strong enough not to eat bread any more. There must be something in it.
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| Sarah Westwell 3 June 08 |
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I've found that too. After a private blood test, I cut out wheat and gluten, which resulted in me losing a little weight and no ulcers at all, but the moment I can't resist nice crusty bread, they come back.
I'm going back to my doctor (who says ulcers are just cause by a virus - what, a 25 year lasting virus with no other symptoms???!) and not I'm not going to be fobbed off, and I'm telling him about this wheat/gluten thing and see if there's anything else the nhs can do. |
| Fran 23 June 08 |
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| I'm in my third week of religiously following a gluten free diet and so far so good. I had a few ulcers when I started and they have healed. I have a small one on my tongue at the moment and I had one in my cheek but it went after a couple of days and didn't develop into a full blown nasty. I intend to keep it up and give it a couple of months - it's hard because I make my own bread and have to resist. Rice cakes are my staple breakfast, smothered in butter and honey so no weight loss like Fran! I'll keep you posted if it works for me |
| Sarah Westwell 24 June 08 |
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| this is an interesting idea to me. I have never been diagnosed with food allergies (but have many airborne allergies...perhaps another link to look in to), but my brother has been diagnosed with Celiac disease. I have never been a big bread or ceral person, however, so I am not sure I have enough in my diet--after looking it up on line--to make a difference. I have been trying to get my hands on a copy of an old book called, Eat Right 4 Your Body Type. I am wondering if there is a genetic component. This book contends that people with different blood types should eat different types of diets for weight maintenance. Could it be the same thing for overall health (and these stupid mouth ulcers)? |
| Holly 26 June 08 |
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| The possible effects of Celiac or Coeliac Disease are pretty serious. If you are gluten-intolerant because of the Disease, and continue eating gluten, you could end up with lymphoma. |
| TomF 27 June 08 |
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| Thanks TomF for your advice but the gluten free diet was a long shot, as the ulcers stopped when I went on a carb free diet last year. It hasn't helped - at the moment I have a big ulcer on the tip of my tongue, one on the side and a huge one in my cheek. Every time I have to answer the phone at work, I'm lisping and drooling. I ought to have shares in Bonjela. It's the only thing that gets me through and the only way I can eat is to lather myself up beforehand. It says 'apply every four hours'. I'm lucky if I last one hour! Must get some of this Boots Mouth Ulcer Treatment. I bought something similar from the shop on this site. It's a hollow cotton bud filled with purple liquid and when you snap the top of the bud, the liquid is absorbed into the end and you apply it. It worked on one I had under my tongue but not on the one on top of my tongue. A big slit appeared and it was actually worse. The whole area turned white and it was a bit scary. While I was ulcer free on the carb free (Atkins type) diet, I also gave up sugar, tea and coffe and significantly cut down my alcohol intake. As the gluten free experiment didn't work, I suppose I should do a kind of elimination diet - what a bore! These bloomin ulcers are a nightmare! |
| Sarah Westwell 10 July 08 |
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| used to get nasty mouth ulcers once or twice a year. ones that last 7 to10 days. iwent to nutritionist told her. she thought my gut flora that is good/bad bacteria balance was wrong.she suggested a probiotic pill basically a pill version of probiotic yoghurts .not had ulcer for nearly two years.it can,t be a co incidence.try it people it may work. not sure if ican say name of pill on website. |
| tony 3 August 08 |
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I have symptoms of gluten intollerance but according to my blood test I am ok. Wheat is somehow problematic to the digestive system as are other things, and these problems can cause mouth ulcers. I too went on Atkins and had great results, but at the time did not suffer from our little friends.
I think the rule of thumb is to have mercy on your digestive system and give it a hand when possible. |
| George 13 August 08 |
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Hey guys. I have whats known as Coeliacs disease which is an allergy to the gluten protein molecule found in Wheat, Oats, Barley and Rye. I have to cut these things out of my diet or i become quite ill. I may be able to explain how the gluten free diet affects your ulcers.
Firstly, people with coeliacs disease suffer from an auto-immune disease by where white blood cells attack the nutrient absorbing follicles in the stomach lining when gluten is introduced to the body. Over time a person can become malnourished which in turn can cause ulcers of both the mouth and stomach. Repeated mouth ulcers was what prompted my doctor to do a coeliac test.
The symptoms of coeliacs are hard to notice and doctors struggle to diagnose it (favouring the diagnosis of Irritable Bowel Syndrome (IBS)). Many people have coeliacs and dont realise they have it. Statistics show that as many as 1 in 100 people have the disease.
Check out this website www.coeliac.co.uk and if you think you suffer from these symptoms then please go and see a doctor and raise the issue.
Untreated coeliacs disease can lead to a number of problems such as osteoporosis and intestinal cancer. |
| Chris 23 August 08 |
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| Hi, I had an endoscopy, colonoscopy, polyps removed, biopsies taken and was advised I had sliding hiatus hernia, acute gastritis, non specific colitis but not coeliacs disease. I was advised I could eat a normal diet and if I found my diarrhea was bad on ocassion to just double up my codein phosphate. What the Consultant didn't seem to realise was that I felt wretched. I had put myself on a gluten free diet for over a year and although not syptom free (spent half my life in the loo) I was felt I was somewhat better. Is it possible that I could have been misdiagnosed or could it be gluten intolerence but not full blown coeliacs? Sorry if some spelling isn't correct. |
| Pauline 6 September 08 |
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| Pauline, trust your instincts and ask for a second opinion. I am considering trying a wheat/gluten free diet to see if it makes any difference and I was wondering how long I would have to try it for - if you tried it for a year and feel there was a difference then I'm sure that cannot be coincidence. I need to do some more research on this topic to make sure I do the food elimination properly, especially because I am a veggie (no guys, that's not the cause, I had these ulcers for 8 years before becoming veggie!). Good luck everyone! |
| LouiseB 13 September 08 |
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| I suffered from severe gastric problems and mouth ulcers for many years. My GP was unsympathetic and unhelpful. Eventually I got him to refer me to a gastroenterologist who did an endoscopy and diagnosed Coeliac disease. I went on to a gluten-free diet immediately and never looked back. My mouth ulcers disappeared within weeks along with all my other problems, so Pauline get a second opinion would be my advice. You sound like a typical Coeliac. |
| JackieM 8 December 08 |
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| Argh! I've just had 2 slices of toast for dinner because my ulcers are too painful to eat proper food for dinner. I will try wheat free for a while but I love bread too!!! How long do you think you have to avoid it to see a difference. I get about 3 - 6 ulcers every 2 weeks for 2 weeks - give or take! |
| Gina G 12 December 08 |
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| Very interesting. Have had terrible mouth ulcers with matching swollen glands for 3 months. Usually they take 6 weeks to go. Visited an allergy hospital in the UK and the doctor said "wheat". First time I'd heard of the link. My old allrgist in New Zealand said that old world grass grains are not much good for people but OK for birds. He said we haven't had long enough to adapt to processing gluten. Rice is OK in small amounts but not in the hay fever season. So, corn, potatoes, tapioca and pumpkin and buckwheat if you need the carbs. |
| Tim B 31 January 09 |
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| I have a nasty ulcer on the side of my tongue at the back, I get them frequently. I have a son who is coeliac and diagnosed about 12 years ago and I think probably my father is coeliac but never diagnosed. I am now waiting on the results of the tests as is my daughter, who also has symptoms. I am working on going gluten free even if the tests are negative, if it makes one feel better and gets rid of damn ulcers, it's worth it. (I'm in New Zealand.) |
| Jenny D 3 February 09 |
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Guys please tell me if my sypmtoms are Coeliac Desease.; I have fever, diarhea, red spot on my hands and my tounge turn into color white with red spot at the end. When I eat bread i got ulceration around my mouth. It begins december 2008 but until now its there. Please help me.
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| Jo B. February 2009 6 February 09 |
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Jo B,
Go to the doctor.
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| Lucie Crohn's Chick 7 February 09 |
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| Two weeks without bread or gluten and all the ulcers have healed and swollen glands no more. Fantastic. Suggest anyone tries the gluten free diet for a month or two and see what happens. You have nothing to lose and everything to gain. |
| Tim B 14 February 09 |
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| been on gluten diet for 3 months got pains in my stomach by my ribs anyone no if this is due to cealiac also got very anxious |
| joan b 21 February 09 |
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| Hi all! I currently cannot talk or eat and find it hard to swallow. I suffered from ulcers over the past 18months, about 4/5 a month, lasting 5/7days. I had surgery recently (unrelated to ulcers or mouth region) and 4 days after surgery I had an unreal outbreak of ulcers on my tongue, in my cheeks and to finish me off roof of my mouth and down the back of my throat. My tongue turned yellow and had a fur like texture (sorry!). I couldn't eat, drink, talk and found it impossible to sleep as swallowing my own natural saliva was had. They went away with steroids and have since some back twice (without going down my throat or yellow tongue) I don't know what I have or never have I heard f anyone with this condition. I have been tested for bechets disease and no! They now think I may suffer from erythema multiforme? I think - anyone heard of this? I need help! Could I be a coeliac? |
| Gillian 14 May 09 |
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| how do u get tested in the UK for gluten allergy? |
| fed up 21 May 09 |
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| Breakspear Hospital have tests to determine if you are a coeliac. Gluten allergy is reversible but coeliac disease is not and causes permanent damage to the gut. They have a website. |
| Tim B 14 July 09 |
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Hi,
I have suffered from mouth ulcers since I was a child and over the past few years they have been continuous and very painful. I have been to the doctors numerous times, been referred to hospital by my dentist, had tests, and no-one found any cause or could help me further.
I took a coeliac test at boots and it was negative and I also had a test done at the hospital which was also negative. However I paid myself to see a nutritionist and she said to go gluten-free for 3 months and see if it makes a difference. Its been 3 weeks and I havent had a single mouth ulcer, so although it seems I dont have coeliacs it might be that I have some reaction to gluten. Or it might be a lucky fluke!
So I would say if you are at the end of your tether like I was and feel like your doctor isnt doing anything helpful, maybe give gluten-free a go for a couple of months and see what happens even if you have been told you dont have coeliacs. Also my nutritionist said that if you have an intolerance to gluten even a very small amount can affect you as it stays in the system. |
| KM 29 January 10 |
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| I have suffered for years and years with the most painful ulcers ever not little ones but great big ones, sometimes on my cheeks, tongue or my lips. They were so painful and I was never ever free from them and I used to feel so miserable. My cousin happen to mention to me one day that she too suffered and she had started to take folic acid and had not had one since, I started on the folic acid and have only had 2 really tiny ones in about a month. I am also being tested for coeliac disease and I didn't realise that one of the symptoms of that is mouth ulcers, god know why the hospital, doctors and dentist have let me suffer this amount of time when I easliy found this information on the internet!! by the way mouth ulcers are not my only symptoms I have all the other symptoms as well that is why they now want to investigate further, one dr told me that people with bowel conditions normally suffer with mouth ulcers too. |
| Jackie 30 January 10 |
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Hi All
Just like to share me experience with you.
Im 44 and have had cronic mouth ulcers since a teenager (usual story)... thought id give up Gluten last year and the whole ulcer thing stopped.
Last week i ate 3 meals with gluten (thought id see what happens) and now have 3 nightmares in my mouth ;)
Far as im concerned case solved! Incidentally, im generally healthier and my overall mood is better
Glenn |
| Glenn 23 February 10 |
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| Hey, just need to let you people know that an allergy to gluten i.e. coeliac disease is a condition that should be taken quite seriously! if you are a coeliac then u must go off gluten for life. continuing to eat gluten can cause a number of severe medical conditions including bowel cancer. This runs in my family. I suffer from mouth ulcers but i have had a biopsy and the blood test and thankfully im not allergic to gluten. but i find it amazing that some people who have found out that they have a gluten allergy or are coeliac continue to eat gluten. this will have detrimental effects in later life. |
| Tess 25 February 10 |
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| Late last week, I got two small canker sores/mouth ulcers inside my upper lip, and then again last night another one on the inside of the lower lip. I didn't know what I could have been doing to cause them, but this morning, I was about to raid the cookie jar for some delicious chocolate cookies my wife recently brought home. Something made me ask her were they gluten-free, and she said no, they are made with wheat flour. They looked just like some gluten-free cookies that she often gets, but the gluten-free cookies were in another box. Mystery solved, and yet another proof-positive to me that gluten intolerance is the main cause of my sores. |
| TomF 1 March 10 |
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| Should have said I was about to raid the cookie jar AGAIN, because I had been doing that. |
| TomF 1 March 10 |
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| Can gluten intolerance cause only mouth sores and no other symptoms? I'm currently trying a gluten-free diet because nothing else seems to work. I'm just curious if anyone else has just suffered from mouth ulcers and not bowel problems, etc. -- symptoms that are normally related to gluten intolerance. Thanks! |
| Jess 3 March 10 |
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I suffer with very painfull mouth ulcers (at the moment at the back of my tongue, roof of my mouth and down my throat. I also have bad IBS with lots of blood! My blood tests have come back normal and the doctor is stumped and has referred me to the hospital. I think I may be intolorent to Gluten. What do others think?
I am away to try a gluten free diet as of today. Its tough without a diagnosis as I would get food on prescription but I will give it a go and see if the ulcers go! |
| Chris S 10 March 10 |
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| My only gluten intolerance symptoms were canker sores/mouth ulcers and anemia/aenemia. The anemia really had no particular symptoms, and I wouldn't have known I had it except for blood results during routine medical exams over the years. I went off gluten 10 years ago and the mouth sores and the anemia went away and haven't returned. |
| TomF 11 March 10 |
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| Went to A+E today as the mouth ulcers were unbareable and I couldn't eat and was very impressed by how good the doctor was. She asked me lots of questions and did some routine tests. She contacted a gastro doctor and he wanted me kept over night. However the doctor said that I would be okay to go home to my own bed tonight and return next day for further tests with the gastro doctor. So heres hoping they will find something which explains my severe mouth ulcers and my bowl movements. |
| Chris S 11 March 10 |
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| i cannot believe all these testimonials the times i have been to the doctors regarding mouth ulcers not once did they tell me about the effects of gluten.WHY? |
| JOHN M.ENGLAND 30 March 10 |
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| I don't think a lot of them know about it... or they don't connect the two. I know that mouth ulcers have been connected with things like IBS and other intestinal problems; however, lots of people don't think they have intestinal problems or only suffer mild discomfort. All of the doctors I went to asked me if I had IBS or celiac's disease, and I said no; therefore, gluten problems are dismissed. It's worth a try though. I cut back on gluten and sugar and mine cleared right up. I started eating gluten again and about a week later some showed up again... |
| Jess 1 April 10 |
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| Thanks for your comments,it makes sense. I am currently trying to go without gluten,but don,t think I will last long as I find gluten free products ie,bread etc,very bland and also pricey.even the porridge oats that I usually enjoy for my breakfast are laden with gluten. |
| JOHN M.ENGLAND 5 April 10 |
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| Rinsing with pure hydrogen peroxide a couple of times a day really helps get rid of them. |
| Monica 12 April 10 |
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| Yes, gluten-free can be difficult; even many types of candy contain gluten! I often tried to find rice-based substitutes instead - they were relatively cheap, and usually quite tasty. For example, rice cakes, vermicelli (which is, I believe, rice-based pasta), rice crackers, etc. all help to forfeit for the gluten. Gluten-free bread can be quite bland and difficult to put into a toaster (I find it crumbles) but there are breads available. If you prefer to do your own baking, there are a number of gluten-free flours. Good luck. Try it for a week or two just to see, and if nothing changes, go back to bread! Mmmm. |
| Jess 12 April 10 |
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HI there folks suffering with like myself. Re allergies, I have recently been to dentist asking about large cheek ulcers (inside mouth) and guess what because I also had white marks on inside cheeks she said it may be Litchen reaction which means I have allergy to either tooth fillings, citrus fruits, or whatever is causing the large swollen painful canker ulcers, anything really that triggers of a reaction causing another huge ulcer, after all these years trying everything on the market, the dentist referred me to the hospital where the doctor also confirmed that this Lichen reaction is commonly mistaken for other reasons causing mouth ulcers and to try and eliminate what I think could be a trigger, so far I have found out that bolognese or any kind of tomato sauce products and definately fresh tomatoes gave me a really bad reaction last week so now I seem to be free at the moment and mouth has all calmed down just by avoiding any tomato stuff and I noted also that when I sucked certain sweets ie boilings, a slight tingle was felt but nothing like the tomato reaction, doc also said many people can get this reaction from oranges, strawberries all sorts of food that perhaps contained cinnamon so if this interests you or you think you may have the same as myself and you have ulcers with white patches on inside of you mouth you could look up the Lichen Planus website where pictures of folk with inside bad ulcers and a lacy type white patches, usually the Lichen Planus also causes a rash elsewhere but Litchen reaction is generally in the mouth. Hope this helps at least one person. so far I feel at least someone has told me a positive thing to try after years of suffering these canker ulcers.
Best of luck.
Beth |
| Beth 13 April 10 |
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| hi, i am a co-sufferer with mouth ulcers all the time in my mouth....they come and they go in a couple of weeks, and by the time they heal, new ones are there.....never thought about Gluten, coz bread and all are fine with me...culprits are citrus stuff, chocolate and all....I found this website quite interesting. http://salicylatesensitivity.com/ I feel like I react to anything that has salicylate in there, so am going to take a YORK test to see what the intolerances are. let me know if anyone has any more insight into this...! |
| PP 23 June 10 |
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Hi, I've suffered mouth ulcers for 35 years, at times up to 12 at a time on lips, tongue, cheeks, gums and throut, many trips to the doctor later I managed to get a blood test, results came back to say I was intolerant to wheat, I've since cut out the wheat (extremely difficult when you realise its in >50% of the food Tesco's sell!!) unclers have cleared up although I do allow myself a pizza once every couple of months.
I also suffer migraines after eating chinese food, must be something to do with the msg's, cut it oout & migraines are a very rare occurance. Another affect of giving up the wheat.... I've lost a couple of stone in weight :)
Give the wheat a miss and see if you feel any better for it. Good Luck
Mike. |
| Mike 24 June 10 |
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| Mike, you probably know this, but to cut-out all the bad gluten, a person has to give up wheat, barley and rye. Beer has malted grain so is off the list, too, unless you can find one of the gluten-free beers. |
| TomF 25 June 10 |
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| hi all. i've been a coeliac for 11 years and haven't had any gluten but have just started getting mouthfuls of very painful ulcers. dr said it's a viral infection but i'm not convinced. eventually got her to do a blood test and awaiting the results. just got over pneumonia and plurasy four months ago and on my second bout of huge ulcers, think it must be a deficiency problem. will keep you posted, might help some people. |
| joji 2 September 10 |
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| Found out I had gluten allergy following fall on bycle on my elbow, shuttered elbow had to have elbow replacement so lost full use of my elbow. As Doctor could not understand he further investigated and found out I have brittle bone desease due to gluten allergy. Gluten allergy prevent obsorbing clucium and other vitamins. If you have gluten allergy do treat it properly unless you want shutter all your bones and other serious illness. |
| tammy 4 September 10 |
