Gluten allergy may be cause for continued mouth ulcers

86 messages in this subject.

Mark - you seemed to have missed the point! The people who have posted here are all shapes and sizes, fit or otherwise, young and old. The conclusion most of them have come to is that if they don't ingest gluten, they don't get mouth ulcers. (And of course, there are other foods you can also be allergic to.)I have been on a gluten and soy-free diet for over 15 years. I have been lactose intolerant for much longer. I still eat a wide variety of healthy food and sometimes not so healthy, and the range of choice is improving every day as companies realise how many people are suffering allergies. If I eat something with gluten or soy I get a mouth ulcer on my tongue within SECONDS! It still happens occasionally, usually when I eat something that may contain traces of gluten or soy. If I DON'T eat gluten or soy I DON'T suffer mouth ulcers. Simple! That is it, day in day out, whether I exercise or not. Of course being physically fit will help the human body function better and improve so many other problems people may have, but it won't stop those who are allergic to something having a reaction to it. Fitness fanatics still have food allergies.
Judy 14 October 12
I just got the results from my test for celiacs today and was negative which surprised the doctor at mayo clinic and the nurse practitioner. In addition to dairy intolerance we have narrowed it down to egg, dairy and wheat that cause reactions. I have canker sores in my mouth, elevated eosiniphils, and gastric damage in my upper gi but not in tje intestine. After eating I get numb and tingling, flushed red to purple cheeks that are hot. Also fatigue all the time, asthma attacks, migraines and I have hoshimotos thyroid disease diagnosed in jr high. I am 34 now. Had these symptoms my whole life and was recomended gluten free by the dr.. hoping for success.
massagegnome 19 May 12
After suffered for a lot of mouth ulcers for years almost everyday but there are some lucky days when I only got a few ulcers,but my mouth almost never gets clean from ulcers,whenever they come up chronically, doctors gave me Kenalog which is containing corticosteroid,I used kenalog for years but I stopped last month. I'm 29,living in Indonesia,where there are no gluten labels on foods and common people here don't know anything about gluten.I am negative from HIV,herpes,with normal CD4 and ANA, and normal organs. Doctors here only said that I am malnutrition and stress (this confused me because I Am not stress, I have a lovable kindhearted husband,friends,job,I'm happy with my life)
on last 23 april my aunt (she's a pension doctor) suggested me to avoid gluten and dairy products and stop using kenalog (Before that, I used to drink milk 3 glasses a day,the milk contains malt, also vitamin E that contains wheat oil, wheat bread, wheat crackers, pasta etc). At first I don't understand what is gluten (people arround me also don't know and they think it's not important to know), I did not trust her (I though,this mouth ulcers will never ever be eliminated forever,just like my father and grandfather who also had this multiple mouth ulcers until they died). But on 24 april I tried to stop eating gluten foods and dairy products, I eat rice, fresh meats,shrimp,vegetables and fruits. In 3 days my ulcers are reduced, that was amazing, I never able to reduce my ulcers if not using kenalog. I was very happy. I gain weight 1,8 kgs in 1 week. My husband said that I look younger and fresh. But few days ago I tried to drink soy milk twice (I thought it can replace cow milk), also I tried to eat spicy foods several times, and yesterday the ulcers come back, they spread and pop very fast covering my mouth especially on tongue, and now I hardly open my mouth,even drinking water can be so painful. I know you all understand. I cannot find any friend with a same soreness here, I tried to search online but could not find any, so I tried to use English and gladly I found this website. After years, I just found out now that I am not alone. My English language is bad,but I try to read your stories carefully. Thank you so much for sharing. From now on I will try harder to avoid gluten, dairy products and spicy foods, and will see what happen in the next few days.
Sawitri Pangemanan 10 May 12
The funny part is that if you don't eat anything with gluten then you have to eliminate Lamb, turkey, rice, millet, cooked carrots, summer squash/zucchini, applesauce, canola oil, salt, almonds, potatoes, canned food, soy, beans, lentils, milk, etc...etc... at the end you have to eliminate everything with sugar... that's why the problems is not food, it is something else. Probably lack of everyday physical exercise! That way we can have daily bowel movements, detox our bodies, better blood circulation and oxygenation, the insulin work better, brain function will be better, and all symptoms will be gone.
Mark 9 May 12
I've had recurrent canker sores since preschool when I had a case of what my mom called "trench mouth." Since then (I'm 43) I've gotten them frequently, sometimes in multiples, in my mouth, throat, and it feels like even further down. Around 7 years ago, I found I was anemic and my cholesterol was very low. My hair started to fall out in clumps and I was losing weight without even trying. Meanwhile my son was experiencing the same canker sores, starting around the same age, after a bad illness. In addition, he was diagnosed with ADHD/HFA, his growth was stalling out, and he was always sick or manifesting allergies. My daughter does not get canker sores - knock on wood!

Doctor after doctor was baffled - test, after test, and still no answers. Finally I connected the canker sores and the wheat - gave up all wheat, and no more canker sores. For the first time in 40 years, I was finally free of those horrible things! Two months later I convinced my son to give up wheat, and his canker sores went away too. I wish I knew if we have celiac, or wheat allergy, or some other autoimmune disorder. It's onset was around age 3 for both of us, after a bad illness??? I don't even know what test to ask for, and frankly with how little doctors helped me so far, I don't know if I can trust them anyway. I know I can't have wheat anymore but I must admit, I miss it and the freedom to eat out! I feel bad that I gave this burden to my son.
Heather 30 April 12
I too have Hashimoto's - diagnosed May 2009, but have had hypothyroid symptoms for at least thirty years. I started to suffer from terrible ulcers in November 2010. I tested negative for coeliac disease, but at the suggestion of my acupuncturist went gluten-free in October 2011. My mouth ulcers disappeared in a few weeks, as did the eczema from which I have suffered for 40 years. I have eaten gluten on three occasions since then and developed mouth ulcers almost immediately afterwards. The eczema has not returned and my skin sensitivities have cleared up completely.
Theresa 20 April 12
Hi there- I just found out I probably have Hashimoto's thyroiditis, been hypothyroid for years...anyway, I was getting a lot of mouth ulcers. I tested negative for Celiac, although an IgA test came back high at one point. I asked my dentist about the sores, and she said she got them, too. She went to a conference, and was told those multi-care toothpastes can be very harsh on your mouth, almost like a chemical burn. I switched to Tom's brand for a month, and have had no sores. Hope that helps.
Mara 30 March 12
Just like drugs there can be cross reactions with foods. You can eat one thing just fine one day and then two weeks later seem to have a reaction to it. Other people have mentioned it and it is almost paramount when trying to figure out what is going on with your body......that being a food diary and it has to probably be at least 6 months of logging foods and symptoms. I get mouth sores quite often too. For those of you who may have had allergy skin tests or blood tests more often than not unless you are just full blown celiac the tests will come up inconclusive. There is a stool sample test you can get to test for celiac, gluten intolerance and others such as milk, soy etc. The advantage of this test is that it goes straight to the source of the distress which is in the intestines and gives a more accurate result. You can also get a biospy from your doctor. You can find information on stool tests probably online I found it at my local Natural Grocers/Vitamin Cottage. And the cost is not bad.
Gluten affects me totally even though the doctors say I'm not Celiac the stool test says I am highly intolerant.
I get mouth sores, itchy, fatigue, depression, headaches, swollen tongue, and probably some that I've forgotten.
About 1.5 years ago I went on a weight loss/detox program called Isagenix and I lost 30 pounds in 6 weeks, felt amazing and all my symptoms went away including the headaches.
Then I started eating breads again and other foods not on the program.
This is when I started getting mouth sores and swollen tongue I thought I may be allergic to something but all my tests came back negative. Then my immunologist decided to see recheck my thyroid levels (I'm Hypothyroid) and it came back at 8.0 no wonder I was exhausted and he also tested me to see if my body was producing an antibody against my own thyroid and confirmed that I had Hashimoto's the level was supposed to be under 25 and I was well over 1100. After researching online, books and other reference sources all of what I read came down to the fact that even if you are not technically allergic to gluten if you have Hashimoto's you need to be gluten free because the gluten will continue to excelerate the destruction of your thyroid and your symptoms will just get worse. - Oh and that weight loss/detox program I told you about; I went back and looked at it and of course it was gluten free. If you are concerned about thyroid/gluten issues google Dr. Datis Kharrazian I got alot of information from him and loved his book. He also has a detox program that takes you off most known foods that people are allergic to and then has you slowly re-introduce them to see how your body reacts.
Don't forget about all the other possible things that may affect you; high fructose corn syrup, artifical sweetners, too much sugar, potatos, soy, corn, etc. And even if you can find a really good gluten free substitute for breads, muffins, cookies, cakes, bagels, etc. it doesnt make them 100% healthy. Breads should be used very little throughout the day and treats like cupcakes, chips, etc should be a treat not an everyday affair. My nutritionist told me that most make the mistake of loading up their cabinets with "Gluten Free" alternatives thinking their healthy but they should be concentrating on organic meats, veggies and fruits. And to those of you who are dairy free if you havent tried Silk's Almond Milk or Blue Diamond Almond Milk in the cold section it is creamer than regular milk. Our family uses the original flavor since the vanilla almond milk has twice the sugar.
It makes amazing smoothies!
Kitty 15 March 12
I just read all these posts and the similarities to my situation tells me it is no coincidence. I have horrible mouth ulcers (and the white lines - "Wickhams striatae" which usually define Oral Lichen Planus) and i kept thinking it had to be related to diet. The sores started about 2 1/2 months ago and i was eating a high protein low calorie diet. As a vegetarian it is always a challenge to find adequate protein, so i began to use many more of the high protein meat substitutes (which are mostly wheat gluten). i lost the desired amount of weight (about 20 lbs) and mostly my previous intestinal issues were gone (cramps, bloating, pain) but i developed the mouth sores. very hard to tell the 'triggers' - definitely high acid foods, tomatoes, salsa, were not good. the ulcers would get a little better, then worse. 2 days ago i ate a meat substitute, and stomach felt a little funny (didnt connect it though) yesterday had another one for dinner. up all night with the old pains, and the burning mouth ulcers. I am going completely gluten free as of today. i would be willing to bet that both the tummy troubles and the lichen planus go away. this message board really helped me, and i hope my comments can help someone else.
Marie 10 March 12
To follow-up on the toothpaste suggestions above, sodium laurel sulfate (SLS) is a detergent used in laundry detergents and in most toothpastes to make the toothpaste foamy. For some people, this detergent in toothpaste is an irritant and contributes to mouth ulcers. Several years ago I switched to a SLS-free toothpaste (Biotene) and saw a marked improvement in the frequency, size, and duration of my mouth ulcers. If I bite my lip or cheek I may still get a small one, but it is smaller and goes away faster. Before you change your whole diet going gluten-free, try just changing your toothpaste first and see if that helps -- this one small change made a big difference for me!
Anne 5 March 12
To feedback to everyone my experience.... I had lower abdominal pain and had blood tests with negative results for anything wrong. I had an ultrasound and there was nothing 'physically' wrong with me... the EXACT site of pain was (according to radiographer) where the small intestine joined the large bowel (basically on the intersection of my waistline and the vertical centre-line of my right leg).

So I thought my problems MUST be food related.

I made a food journal and noted how I felt at the time of eating. THis was a 6 month process that allowed me to realise bread was a culprit. Further research pointed me to possible gluten issues.

I cut out gluten. The difference was nothing short of AMAZING... I felt like I was walking on air... had energy abound and generally felt like I hadn't a care in the world.

If you want to do this and short-cut the process of eating journal etc then go ahead and try a gluten free diet.... please note though:

1) IF you are gluten intollerant and you have "mild" symptoms - you may wish to continue eating gluten and putting up with the mild issues.... the reason? Once you go without it is just about IMPOSSIBLE to go back. Your body gets VERY used to not having gluten anymore and even the slightest amount makes you feel V.V.poorly.

2) Gluten is called all kinds of things in different labelling for different manufacturers - I even fall for it today - after 3 years of no gluten.... it's where you wouldn't imagine!!!


When I do get caught-out with a hidden gluten ingredient, I get ulcers straight away and sometimes swollen glands with it... lethargy, headaches and irritability beyond reason!

Good luck and I hope I have been of *some* help with someone - like what previous posters here have been to me :)
Stu - Aylesbury, Bucks. 29 February 12
I've had mouth ulcers almost forever-multiple at a time and lasting for days on end. I had always attributed it to all the tomato sauce on pasta and citrus that I eat (my family has Italian roots so pasta and bread are very common). For years I was vegetarian, and for awhile now I've been vegan, and 1 Feb 2012 I cut out gluten and since then no ulcers. I find it incredible that as soon as I stopped eating it, the three or four I had disappeared almost immediately. I experimented with it over the summer, stopped, they went away, and then I started eating it again, and ulcers returned. My sister thinks I'm making it up for attention, but she's never had to deal with a few little sores in her mouth making her whole body ache. My mum supports me though, which is wonderful. I started to use garbanzo bean flour in baking, and I love it! 26 days ulcer free, the longest it's ever been!
Victoria 26 February 12
Me again.....Just read the post about toothpaste. I also found toothpaste to be problematic. I think you will find it is the SLFs as my mouth was constantly sore when using regular toothpaste...also my scalp would be sore as this ingredient is also in most shampoos. Try switching to toothpaste from the health food shop.....or if this is above your budget use just plain water...or salt...or baking soda...or coconut oil. All these work well for me.
Blonde Biker 9 February 12
I too was suffering with mouth ulcers quite frequently, also pain in my left ear and swollen glands. I would also frequently have a very sore scalp, as if it were sunburnt. One day I realised that these mouth ulcers always followed eating popcorn...I also realised that once I started to eat popcorn I always had to finish the whole bag, so was obviously finding it a bit addictive. I cut out popcorn and the moth ulcers improved but many of the other symptoms were still present to some degree. I then realised that I was also quite addicted to Tortillas, another corn product. So now not eating my 2 favourite snack foods I was seeing improvent, but not a complete lack of symptoms. It is amazing just how much corn creeps into our diets. Sauces and gravies thickened with corn flour affected me...and I also remembered that glucose syrup was derived from corn which was in my favourite low calorie hot chocolate drink. So maybe this could also be a problem for some of you sufferers out there...try excluding corn and corn products and see what happens. If I have problems now I look back over what I have recently eaten and always find some corn product to be the culprit. I advise you to do some research to discover the many names for corn derivatives...such as maize starch, glucose syrup etc.
Blonde Biker 9 February 12
I've had canker sores for years. The dentist said it's a virus, prescribed Valtrex for when they were really bad. The theory is that when you are fighting an infection or cold of some sort, you can get a cold sore or canker sore. Well -- I finally stopped using a toothpaste with flouride, and that helped tremendously. I don't think it's the actual flouride, because I use a flouride rinse that doesn't seem to bother me, but something that happens to also be in toothpast with flouride. I'm using Melaleuca non-flouride toothpaste. I was recently diagnosed with Celiac disease, too, and I thought "ah ha! That's it!" But, I've been eating gluten free but recently ran out of my toothpaste. Until I could get more, I started using this other toothpaste I have, and within days I got 3 canker sores. I'm stopping it now -- it's too painful otherwise. For me, it wasn't the gluten, but whatever was in the toothpaste. But, if I think about it, could be gluten, because the ingredients say Tocopherol, which is sometimes derived from wheat, although not necessarily. All I know is that eating gluten-free but using the flouride toothpaste caused the ulcers to come back
Michelle 6 February 12
what a miracle that i found this site! I have 30 ulcers at the moment and a lump under my jaw, which from reading the above sounds like its a swollen gland. no appointments free at the docs, so I'm rinsing my mouth with salt water every hour or so. I started eating porridge for breakfast last week and have been baking my own bread, so I'm thinking it's gluten. thank you everyone for writing all these little notes. so helpful. hope you all get ulcer-free! xx
Kate 23 January 12
My son has suffered terribly as well with mouth ulcers and we have tried most of the above, things seem to work for a short time, then the ulcers return. However, one doctor suggested he cut out crisps - he was so desperate he has cut out ALL potato - with success!!! He has had one or two small ulcers when he had a bad cold - but nothing compared to what he used to suffer with - he has been potato and ulcer free now for about 3 months. Its worth a try for you!!
Angie 13 January 12
I am finally free of mouth ulcers, I have suffered with chronic mouth ulcers my entire life as well as various other allergies and doctors couldn't tell me why. Within two weeks of seeing an holistic doctor and giving up gluten I no longer had mouth ulcers, it really was that simple. Swapping over to a gluten free diet is not difficult and the relief is just amazing.
Glenda 2 January 12
Gluten has always been an issue, its just that very few people were aware of it and there was no internet to do your own research. In the 50's young children with undiagnosed gluten intolerance were put on a diet of only bananas and improved greatly, but were told after several years that they were cured and could eat normally again. Symptoms can take years to return, but the damage being done to the small intestine continues and the repercussions can be debilitating. I have been gluten free for 2.5 years having had a intestinal biopsy which confirmed celiac disease - my life changed so radically I cannot being to describe the difference it has made. Mouth ulcers were not a problem really but I suffered from the skin rash, DH, which plagued me from my earliest years, mostly appearing on my knees, elbows, scalp and lower spine - it was itchy and uncomfortable and unsightly and completely misdiagnosed for 48 years. If mouth ulcers are driving you crazy, test for gluten (wheat/barley/rye) intolerance. You don't have to be diagnosed with celiac disease to have a reaction to gluten - it can be gluten sensitivity as well. Good luck everyone.
xabbar 19 December 11
How safe is our food supply in regards to how wheat is handled and additives which are used to preserve freshness? I do not remember gluten being an issue years ago.
Dena Thompson 1 December 11
I has terrible mouth ulcers and ended up having a very bad B12 and iron deficiency. They never figured out why. The ulcers returned a few months ago - I stop eating bread and they disappear
LizB 15 September 11
I use Mc Leans Mouthwash to avoid mouth ulcers due to Gluten allergy .I try to keep to a Gluten free diet but when I inadvertently eat Gluten and a mouth ulcer appears, Mcleans Mothwash fixes the ulcers overnight.
Faith van Dam 12 September 11
I had regular mouth ulcers all my life, sometimes for no apparent reason, but invariably if I bit my mouth or scratched my throat swallowing something sharp. Probably once a month or so. Then about two years ago I went on a low carb diet which in practice was gluten free (bread, pasta etc obviously not low carb!). Mouth ulcers stopped completely. The only one I've had is quite recently and I strongly suspect it was a result of a restaurant meal (I ordered a salad but I'm pretty sure there were scraps of bread in it). It is worth saying that I never experienced any GI upset that I'd related to gluten and also that I had had a celiac blood test while still eating gluten which was negative, so gluten sensitivity is not necessarily picked up on standard tests or symptoms. Also interesting is that my hayfever is significantly better since going gluten free. Clearly gluten is causing the immune system to overreact in some way. I'm convinced it's worth anyone with GI or immune issues trying a gluten free diet.
Lou 16 August 11
I have a daughter diagnosed 24 years ago with Coeliac Disease. Mouth ulcers and dental enamel defects are both symptoms of undiagnosed Coeliac Disease, among a whole host of other symptoms both common and less common. Please obtain accurate information by researching on websites of recognised Coeliac / Celiac societies in your country.

Before being tested for Coeliac Disease, you must not go on a gluten free diet. If you do, the blood test results cannot detect the antibodies in the blood and the results will come back negative. A small bowel biopsy should follow if the blood test indicates that antibodies are elevated.

The preparation for testing is the equivalent of 4 slices of wheat bread daily for 6 weeks prior to the blood test.

Sandra 5 July 2011 5 July 11
Kelley - I have suffered for 17 years with chronic mouth ulcers and have just recently cut out gluten and I haven't had any mouth ulcers going on 1 week - YEAH! - Yes try it.
Melanie in St. Pete 19 June 11
I just came upon this website and information. I have now had severe mouth ulcers for about 2 months. They come and stay for a good 4 to 7 days, maybe they go away for 2 to 3 days and I think "hallelujah" and then to my dismay, they return. Needless to say they are very painful painful while eating, painful while talking, brushing my teeth is a real nuisance. I think if nothing else, I am going to try a gluten free diet. It sure can't hurt. Wish me luck!
kelley 5 June 11
I've been plagued by painful mouth ulcers for the past couple of years. I recently had allergy testing nd was advised to eliminate, wheat, gluten, dairy products. apples, beef and several e-numbers/food colourings. Having totally changed my diet, the mouth ulcers totally disappeared. However, I recently went to the US & was seduced by bagels, cream cheese, pizza etc & my oh my oh my....I'm living and learning! I am about to see my GP to be tested for Coeliac Disease but in the meantime my diet will consist of rice, fish, white meat and fruit...
annetteo 31 May 11
I have had mouth ulcers since i was 13 years old maybe younger and sever sinus infections. Usually happened in the roof of my mouth exposing my sinuses to infection. I found out i was very allergic to Wheat/ Gluten and Milk. After getting on some natural immune boosters and staying away from gluten and milk very strictly my mouth ulcers got much much better sometimes my usual out door allergies to flowers and stuff blooming will flare it up but i also use the "Neti Pot" (seeing it on Oprah Show with Dr. Oz) with the salt rinse in it and 2 drops of whats called "GSE- grape seed extract" its a bacteria killer. When i stick to this i feel much better!! I can actually function
Ash 26 May 11
It is so bizarre to me that people would prefer mouth ulcers to giving up bread...
I have never been tested for a wheat intolerance/ celiac but my life changed dramatically when I gave up wheat and dairy. No more mood swings/ getting sick all the time/ bloating/ nausea.

try Udis bread. It tastes exactly the same. Also make everything yourself. Your body will thank you. Stop being lazy and change you life.
Brie 12 May 11
Ihave had allergies all of my 65 years. I could eat all foods until about 10 years ago. My throat swelled when eating mellons or alvacados. Last summer tne inside of my mouth (not tongue) started swelling when I ate tomatos. Now my mouth swells when eating blue berries, a salad or crab cakes. I got a Kenalog shot 3 months ago, allergy shots every 3 weeks, allergy pills twice a day.
Rascal 65 17 January 11
This is so interesting to read. My Mum is coelliac and I was tested at 16 to see if I was and the test result was negative and I wasnt allergic which was a relief! Over the last year or so (Im now 32) I keep getting a really bad mouth ulcer (more like a swelling than a classic mouth ulcer) on the roof of my mouth just behind my front left tooth. Probably on average once a month. Its the same place everytime it occurs and it is so painful. Bongela doesnt do much apart from numb it for about 10 minutes but it lasts for about a week. It hurts to eat. Having read the above Im going to start a food diary and keep you posted!
LucyS32 14 January 11
I've had mouth ulcers since I turned a teenager, I'm 22 now, they last anywhere from a week to two weeks and are SO sore. Recently I have had the worst mouth ulcers I've ever experienced, lasting 2 weeks, four on the bottom side of my tongue in a little collection making it very painful and hard to talk and eat and more at the tip of my tongue, I had a very bad diet so that wouldn't have helped. My mom said she experienced the same and they went in her thirties :( But earlier today after 2 sandwiches today immediately after the second one (a few hrs later) I felt my mouth ulcers (that were about to go) tingle and get sore again, I do like my bread & carbs and feel I have to give up bread after this!
Louise88 3 January 11
Yep - same. I had crippling mouth ulcers for years (except when pregnant and breast feeding oddly); that and occasional but not severe anaemia were the only symptoms I had for my accidental diagnosis of coeliac disease (I asked for the test because my cousin had just tested positive, I'm 36 and probably had it all my life & I thought I was totally healthy), I swear it's worth going gluten free just to get rid of the ulcers, they are so awful and turn me into an irritated crazy lady - but it's also great to know that I have coeliacs - I only wish I'd known earlier as I lost a pregnancy at 20 weeks (between my two gorgeous girls), and I'm convinced it's because of the disease I didn't know I had.
Lisa 30 November 10
I had mouth ulcers pretty regularly since I was a little kid. I tested negative for celiac disease, but tried a gluten free diet anyway. The ulcers went away almost straight away. I've got them a couple of times when I've accidentally had gluten, but never apart from that. I think there's definitely a link. Not sure if it's generally an allergy link, or from being run down from allergies, or if it's gluten specifically. For me gluten solved the problem though. Plus I lost weight, feel more relaxed and less anxious and generally much better.
Amy 20 November 10
I tested negative for a wheat sensitivity when using a blood test. I still believed it was the cause of my very painful mouth ulcers, as I had been tested for EVERYTHING else. I found a lab who would do bowel movement test (sorry for the graphic description, but I know the next question would be 'what was the test'). It came back positive for Gluten intolerance/sensitivity. I gave up Gluten about 6 months ago and have been much better. They are not gone completely, but much milder...and I can often tie them to restaruant meals where I cannot control the ingredients (many of our local restaurants have Gluten-free menus now). It is definitely worth trying...many of our local grocery stores carry gluten free products (and you can get them on-line, too) so I have found things that the whole family will eat. It is more expensive to feed your family Gluten-free--espcially if you still want pasta and desserts. I still miss my bagels, but not much else.
Holly 11 November 10
Gluten free diet has stopped my mouth sores that I've been having for 15 years. You really have to commit to NO gluten. Many things include it in their ingredients, but you have to read labels, ask questions when dining out and be very aware of what you put in your mouth. Some are so sensitive, they cannot use the same utensil that has touched something with gluten in it. Give it a try...nothing to lose, but you must go off it 100%
Tony 6 November 10
I had my first outbreak of mouth ulcers begining of this year and a very upset stomache with cramps...so worired and in pain. some ulcers where on my tongue and i'd never been so in pain...all day...and all night. it was a misery. I had a full blood check and they found nothing. It was a gut instinct (no pun intended!) that i felt break was the culprit. I cut out all sorts of foods over the following months, fruit, diary..stripped it right back until i was living on boiled rice and a little herbs...just so painful to eat. I then read about gluten on here and cut if out so bread went and as much as I could find that contained gluten. It started to clear and I was finally free from ulcer pain for two weeks..then they came back! i found it the Soy source i'd starting using on rice contained gluten. I had to check everything but they went. So for me, i'm not coealic according to docs test but gluten is not good for me at all. I had some pitta bread the other day and often cant resist the urge for bread..two days and one of the little critters comes back. However, I dont know if its getting better but i can tolerate very small doses. Some days i've had something with gluten like a buscuit or crisps and i'm fine but if i have bread a couple of days running its back. I'm learning the levels but its still difficult. I always loved fresh bread...and looking back, ate far too much of it really. I'm slim but always had a bloated tummy after eating it...since stopping bread i've certainly got a flatter tummy which is a bonus! So feel for anyone reading this with mouth ulcers...i use to cry myself to sleep and i'm 36!! they are horrendous, especially on the tongue...good luck. message me if you wanna cry!
clare 28 October 10
I've been diagnosed with IBS. Which means they never really diagnosed me with anything, just called it IBS because they couldn't find anything wrong. I have double over stomach aches with alternating diarrhea or constipation and it's been that way since I was an infant. I started taking Creator (for my high chlorestol) and magicly my stomach aches were reduced by 80%. Yeah! 3 years ago I started having ulsers on my tongue so painful I couldn't talk. My OBGYN told me it was a vit. b deficiancy. So started taking a complex. Been great for 3 years. Then out of the blue started having bad urinary tract issues. Turned out I was reacting to the vit b. Has to stop taking it. I was good for 5 months but the ulsers have started again. Started a lower does of the vit b, but urinary tract problems start within a few days of taking it. AHHRRGG!
My aunt is a acupunturist and herbalist. She was telling me about Gulton damaging the vitamin uptake system in your gut which causes a vitamin deficiance thus causing the ulsers on your tongue. She told me to start with just the oral lozenges a couple times a day of vit b-12. Unfortunaly, same story for me. But maybe they might work for someone else that is less sensitive.
I guess I'll try the gluten free diet. See what happends, maybe it will fix my IBS too. Hope it works. Thanks for the insights.
Selina 29 oct. 7 8 October 10
Three years ago, I started having horrible outbreaks of mouth and tongue ulcers. My doctors assured me that it had nothing to do with menopause which I though might be the link. I started testing foods and over a few months, I began to see a pattern. Anytime I ate anything with nuts, any nut, I got ulcers and burning of my lips. Once again my doctors told me that nut allergies do not react this way. but I have kept away from nuts and have not had any ulcers. When I do start to get one, I know I have eaten something with nuts or nut oil. We are all different and our doctors sometimes forget that. I have some kind of nut allergy. I don't break out in hives, I don't swell up. I get mouth and tongue ulcers. Pecans are the worst for me. So I will continue to watch what I eat and if i get an ulcer and know for a fact that I haven't had any nuts, then that food gets crossed off my list of things to eat. Food allergies are sometimes the culprit to mouth ulcers. Run you own tests. Experiment with foods. Keep a journal to see when you break out and then look at what you had eaten the day before. Help yourself and remember, we all don't always fit into our doctor's book of classic symptoms for allergies.
Lynn 28 September 10
Heather-I experience mouth ulcers within minutes of consuming gluten or wheat products, followed by yeast infections and horrific cramps when my menstrual cycle begins. I can pinpoint the exact thing(s) that I ate which causes these problems. Ofcourse, the mouth ulcers last for at least two weeks (like your husbands) and can sometimes show up much later than within minutes. It makes a lot of sense (to me at least) that he has sores if he "cheated." I often eat plain yogurt with probiotics to help get rid of the mouth ulcers along with gargling with a raspberry leaf infusion. Also, every doctor I went to said there was nothing wrong with me even though I had yeast infections for a year and a half and mouth ulcers my whole life. I had to take it upon myself to diagnose this. I hope he feels better soon!
Brianna 22 September 10
Hi All, I'm posting this on behalf of my husband, although he doesn't know it yet. He seems to have suffered most of his life with a few canker sores here and there (he's 31 now). One time about 11 years ago he suffered from a food poisoning incident that sent him to the hospital with severe stomach pains. When he was in the hospital all of the doctor's asked if he had Celiac or Chron's which he answered no. Then a few years later his canker sores started getting worse and worse per incident. When these events start occurring he can feel the sores coming up in his mouth and when they finally arrive they are sometimes 30+ spots strong (all in the roof, his gums, his cheeks, top and bottom of his tongue, on the inner part of his lips, as well as at the back and potentially down his throat). When the episodes happen they tended to be approximately 3-4 months apart and last for approximately 10-14 days. Again like some of you, he will get some sores that are very large in size in addition. He has gone to many doctor's (GP's and ENT) and his dentist. In the winter he went to a naturopath who recommended he basically not eat anything but meat, fruit, veg, fish, and nuts. When he decided to do the basically gluten-free diet that the naturopath recommended he noticed a huge difference in really not having any episodes. The problem is that he has a mouth-full right now, despite doing the whole diet thing for at least 3 months. Now he did "cheat" a few weeks ago for one piece of bread (small - but really good!) and one cookie (not gluten-free). Every doctor that he's been to have no answers "Oh maybe it's an autoimmune disorder/disease" but really aren't very helpful. I'm hoping that someone might be able to recommend some alternatives that he/we haven't tried. I am always so concerned about him not being able to eat or talk for almost 2 weeks during these episodes. It also is always associated with some sort of weight loss, added on to the 30 lbs he lost since starting on the gluten-free diet...and he's not a huge guy. It's a fairly big strain on our family when this occurs, and I know the stress it causes him socially as well. I'd love to solve this one for him, take his pain away, but we seem to consistently hit roadblocks. Any suggestions would be so much appreciated. Thank you, and good luck to you all in your search. As someone who may not suffer the exact pain, it is definitly hard to watch your loved one suffer. My heart goes out to you all.
heather 10 September 10
Found out I had gluten allergy following fall on bycle on my elbow, shuttered elbow had to have elbow replacement so lost full use of my elbow. As Doctor could not understand he further investigated and found out I have brittle bone desease due to gluten allergy. Gluten allergy prevent obsorbing clucium and other vitamins. If you have gluten allergy do treat it properly unless you want shutter all your bones and other serious illness.
tammy 4 September 10
hi all. i've been a coeliac for 11 years and haven't had any gluten but have just started getting mouthfuls of very painful ulcers. dr said it's a viral infection but i'm not convinced. eventually got her to do a blood test and awaiting the results. just got over pneumonia and plurasy four months ago and on my second bout of huge ulcers, think it must be a deficiency problem. will keep you posted, might help some people.
joji 2 September 10
Mike, you probably know this, but to cut-out all the bad gluten, a person has to give up wheat, barley and rye. Beer has malted grain so is off the list, too, unless you can find one of the gluten-free beers.
TomF 25 June 10
Hi, I've suffered mouth ulcers for 35 years, at times up to 12 at a time on lips, tongue, cheeks, gums and throut, many trips to the doctor later I managed to get a blood test, results came back to say I was intolerant to wheat, I've since cut out the wheat (extremely difficult when you realise its in >50% of the food Tesco's sell!!) unclers have cleared up although I do allow myself a pizza once every couple of months.
I also suffer migraines after eating chinese food, must be something to do with the msg's, cut it oout & migraines are a very rare occurance. Another affect of giving up the wheat.... I've lost a couple of stone in weight :)
Give the wheat a miss and see if you feel any better for it. Good Luck
Mike.
Mike 24 June 10
hi, i am a co-sufferer with mouth ulcers all the time in my mouth....they come and they go in a couple of weeks, and by the time they heal, new ones are there.....never thought about Gluten, coz bread and all are fine with me...culprits are citrus stuff, chocolate and all....I found this website quite interesting. http://salicylatesensitivity.com/ I feel like I react to anything that has salicylate in there, so am going to take a YORK test to see what the intolerances are. let me know if anyone has any more insight into this...!
PP 23 June 10
HI there folks suffering with like myself. Re allergies, I have recently been to dentist asking about large cheek ulcers (inside mouth) and guess what because I also had white marks on inside cheeks she said it may be Litchen reaction which means I have allergy to either tooth fillings, citrus fruits, or whatever is causing the large swollen painful canker ulcers, anything really that triggers of a reaction causing another huge ulcer, after all these years trying everything on the market, the dentist referred me to the hospital where the doctor also confirmed that this Lichen reaction is commonly mistaken for other reasons causing mouth ulcers and to try and eliminate what I think could be a trigger, so far I have found out that bolognese or any kind of tomato sauce products and definately fresh tomatoes gave me a really bad reaction last week so now I seem to be free at the moment and mouth has all calmed down just by avoiding any tomato stuff and I noted also that when I sucked certain sweets ie boilings, a slight tingle was felt but nothing like the tomato reaction, doc also said many people can get this reaction from oranges, strawberries all sorts of food that perhaps contained cinnamon so if this interests you or you think you may have the same as myself and you have ulcers with white patches on inside of you mouth you could look up the Lichen Planus website where pictures of folk with inside bad ulcers and a lacy type white patches, usually the Lichen Planus also causes a rash elsewhere but Litchen reaction is generally in the mouth. Hope this helps at least one person. so far I feel at least someone has told me a positive thing to try after years of suffering these canker ulcers.
Best of luck.
Beth
Beth 13 April 10
Yes, gluten-free can be difficult; even many types of candy contain gluten! I often tried to find rice-based substitutes instead - they were relatively cheap, and usually quite tasty. For example, rice cakes, vermicelli (which is, I believe, rice-based pasta), rice crackers, etc. all help to forfeit for the gluten. Gluten-free bread can be quite bland and difficult to put into a toaster (I find it crumbles) but there are breads available. If you prefer to do your own baking, there are a number of gluten-free flours. Good luck. Try it for a week or two just to see, and if nothing changes, go back to bread! Mmmm.
Jess 12 April 10
Rinsing with pure hydrogen peroxide a couple of times a day really helps get rid of them.
Monica 12 April 10
Thanks for your comments,it makes sense. I am currently trying to go without gluten,but don,t think I will last long as I find gluten free products ie,bread etc,very bland and also pricey.even the porridge oats that I usually enjoy for my breakfast are laden with gluten.
JOHN M.ENGLAND 5 April 10
I don't think a lot of them know about it... or they don't connect the two. I know that mouth ulcers have been connected with things like IBS and other intestinal problems; however, lots of people don't think they have intestinal problems or only suffer mild discomfort. All of the doctors I went to asked me if I had IBS or celiac's disease, and I said no; therefore, gluten problems are dismissed. It's worth a try though. I cut back on gluten and sugar and mine cleared right up. I started eating gluten again and about a week later some showed up again...
Jess 1 April 10
i cannot believe all these testimonials the times i have been to the doctors regarding mouth ulcers not once did they tell me about the effects of gluten.WHY?
JOHN M.ENGLAND 30 March 10
Went to A+E today as the mouth ulcers were unbareable and I couldn't eat and was very impressed by how good the doctor was. She asked me lots of questions and did some routine tests. She contacted a gastro doctor and he wanted me kept over night. However the doctor said that I would be okay to go home to my own bed tonight and return next day for further tests with the gastro doctor. So heres hoping they will find something which explains my severe mouth ulcers and my bowl movements.
Chris S 11 March 10
My only gluten intolerance symptoms were canker sores/mouth ulcers and anemia/aenemia. The anemia really had no particular symptoms, and I wouldn't have known I had it except for blood results during routine medical exams over the years. I went off gluten 10 years ago and the mouth sores and the anemia went away and haven't returned.
TomF 11 March 10
I suffer with very painfull mouth ulcers (at the moment at the back of my tongue, roof of my mouth and down my throat. I also have bad IBS with lots of blood! My blood tests have come back normal and the doctor is stumped and has referred me to the hospital. I think I may be intolorent to Gluten. What do others think?

I am away to try a gluten free diet as of today. Its tough without a diagnosis as I would get food on prescription but I will give it a go and see if the ulcers go!
Chris S 10 March 10
Can gluten intolerance cause only mouth sores and no other symptoms? I'm currently trying a gluten-free diet because nothing else seems to work. I'm just curious if anyone else has just suffered from mouth ulcers and not bowel problems, etc. -- symptoms that are normally related to gluten intolerance. Thanks!
Jess 3 March 10
Should have said I was about to raid the cookie jar AGAIN, because I had been doing that.
TomF 1 March 10
Late last week, I got two small canker sores/mouth ulcers inside my upper lip, and then again last night another one on the inside of the lower lip. I didn't know what I could have been doing to cause them, but this morning, I was about to raid the cookie jar for some delicious chocolate cookies my wife recently brought home. Something made me ask her were they gluten-free, and she said no, they are made with wheat flour. They looked just like some gluten-free cookies that she often gets, but the gluten-free cookies were in another box. Mystery solved, and yet another proof-positive to me that gluten intolerance is the main cause of my sores.
TomF 1 March 10
Hey, just need to let you people know that an allergy to gluten i.e. coeliac disease is a condition that should be taken quite seriously! if you are a coeliac then u must go off gluten for life. continuing to eat gluten can cause a number of severe medical conditions including bowel cancer. This runs in my family. I suffer from mouth ulcers but i have had a biopsy and the blood test and thankfully im not allergic to gluten. but i find it amazing that some people who have found out that they have a gluten allergy or are coeliac continue to eat gluten. this will have detrimental effects in later life.
Tess 25 February 10
Hi All
Just like to share me experience with you.
Im 44 and have had cronic mouth ulcers since a teenager (usual story)... thought id give up Gluten last year and the whole ulcer thing stopped.
Last week i ate 3 meals with gluten (thought id see what happens) and now have 3 nightmares in my mouth ;)

Far as im concerned case solved! Incidentally, im generally healthier and my overall mood is better
Glenn
Glenn 23 February 10
I have suffered for years and years with the most painful ulcers ever not little ones but great big ones, sometimes on my cheeks, tongue or my lips. They were so painful and I was never ever free from them and I used to feel so miserable. My cousin happen to mention to me one day that she too suffered and she had started to take folic acid and had not had one since, I started on the folic acid and have only had 2 really tiny ones in about a month. I am also being tested for coeliac disease and I didn't realise that one of the symptoms of that is mouth ulcers, god know why the hospital, doctors and dentist have let me suffer this amount of time when I easliy found this information on the internet!! by the way mouth ulcers are not my only symptoms I have all the other symptoms as well that is why they now want to investigate further, one dr told me that people with bowel conditions normally suffer with mouth ulcers too.
Jackie 30 January 10
Hi,

I have suffered from mouth ulcers since I was a child and over the past few years they have been continuous and very painful. I have been to the doctors numerous times, been referred to hospital by my dentist, had tests, and no-one found any cause or could help me further.

I took a coeliac test at boots and it was negative and I also had a test done at the hospital which was also negative. However I paid myself to see a nutritionist and she said to go gluten-free for 3 months and see if it makes a difference. Its been 3 weeks and I havent had a single mouth ulcer, so although it seems I dont have coeliacs it might be that I have some reaction to gluten. Or it might be a lucky fluke!

So I would say if you are at the end of your tether like I was and feel like your doctor isnt doing anything helpful, maybe give gluten-free a go for a couple of months and see what happens even if you have been told you dont have coeliacs. Also my nutritionist said that if you have an intolerance to gluten even a very small amount can affect you as it stays in the system.
KM 29 January 10
Breakspear Hospital have tests to determine if you are a coeliac. Gluten allergy is reversible but coeliac disease is not and causes permanent damage to the gut. They have a website.
Tim B 14 July 09
how do u get tested in the UK for gluten allergy?
fed up 21 May 09
Hi all! I currently cannot talk or eat and find it hard to swallow. I suffered from ulcers over the past 18months, about 4/5 a month, lasting 5/7days. I had surgery recently (unrelated to ulcers or mouth region) and 4 days after surgery I had an unreal outbreak of ulcers on my tongue, in my cheeks and to finish me off roof of my mouth and down the back of my throat. My tongue turned yellow and had a fur like texture (sorry!). I couldn't eat, drink, talk and found it impossible to sleep as swallowing my own natural saliva was had. They went away with steroids and have since some back twice (without going down my throat or yellow tongue) I don't know what I have or never have I heard f anyone with this condition. I have been tested for bechets disease and no! They now think I may suffer from erythema multiforme? I think - anyone heard of this? I need help! Could I be a coeliac?
Gillian 14 May 09
been on gluten diet for 3 months got pains in my stomach by my ribs anyone no if this is due to cealiac also got very anxious
joan b 21 February 09
Two weeks without bread or gluten and all the ulcers have healed and swollen glands no more. Fantastic. Suggest anyone tries the gluten free diet for a month or two and see what happens. You have nothing to lose and everything to gain.
Tim B 14 February 09
Jo B,

Go to the doctor.

Lucie Crohn's Chick 7 February 09
Guys please tell me if my sypmtoms are Coeliac Desease.; I have fever, diarhea, red spot on my hands and my tounge turn into color white with red spot at the end. When I eat bread i got ulceration around my mouth. It begins december 2008 but until now its there. Please help me.

Jo B. February 2009 6 February 09
I have a nasty ulcer on the side of my tongue at the back, I get them frequently. I have a son who is coeliac and diagnosed about 12 years ago and I think probably my father is coeliac but never diagnosed. I am now waiting on the results of the tests as is my daughter, who also has symptoms. I am working on going gluten free even if the tests are negative, if it makes one feel better and gets rid of damn ulcers, it's worth it. (I'm in New Zealand.)
Jenny D 3 February 09
Very interesting. Have had terrible mouth ulcers with matching swollen glands for 3 months. Usually they take 6 weeks to go. Visited an allergy hospital in the UK and the doctor said "wheat". First time I'd heard of the link. My old allrgist in New Zealand said that old world grass grains are not much good for people but OK for birds. He said we haven't had long enough to adapt to processing gluten. Rice is OK in small amounts but not in the hay fever season. So, corn, potatoes, tapioca and pumpkin and buckwheat if you need the carbs.
Tim B 31 January 09
Argh! I've just had 2 slices of toast for dinner because my ulcers are too painful to eat proper food for dinner. I will try wheat free for a while but I love bread too!!! How long do you think you have to avoid it to see a difference. I get about 3 - 6 ulcers every 2 weeks for 2 weeks - give or take!
Gina G 12 December 08
I suffered from severe gastric problems and mouth ulcers for many years. My GP was unsympathetic and unhelpful. Eventually I got him to refer me to a gastroenterologist who did an endoscopy and diagnosed Coeliac disease. I went on to a gluten-free diet immediately and never looked back. My mouth ulcers disappeared within weeks along with all my other problems, so Pauline get a second opinion would be my advice. You sound like a typical Coeliac.
JackieM 8 December 08
Pauline, trust your instincts and ask for a second opinion. I am considering trying a wheat/gluten free diet to see if it makes any difference and I was wondering how long I would have to try it for - if you tried it for a year and feel there was a difference then I'm sure that cannot be coincidence. I need to do some more research on this topic to make sure I do the food elimination properly, especially because I am a veggie (no guys, that's not the cause, I had these ulcers for 8 years before becoming veggie!). Good luck everyone!
LouiseB 13 September 08
Hi, I had an endoscopy, colonoscopy, polyps removed, biopsies taken and was advised I had sliding hiatus hernia, acute gastritis, non specific colitis but not coeliacs disease. I was advised I could eat a normal diet and if I found my diarrhea was bad on ocassion to just double up my codein phosphate. What the Consultant didn't seem to realise was that I felt wretched. I had put myself on a gluten free diet for over a year and although not syptom free (spent half my life in the loo) I was felt I was somewhat better. Is it possible that I could have been misdiagnosed or could it be gluten intolerence but not full blown coeliacs? Sorry if some spelling isn't correct.
Pauline 6 September 08
Hey guys. I have whats known as Coeliacs disease which is an allergy to the gluten protein molecule found in Wheat, Oats, Barley and Rye. I have to cut these things out of my diet or i become quite ill. I may be able to explain how the gluten free diet affects your ulcers.

Firstly, people with coeliacs disease suffer from an auto-immune disease by where white blood cells attack the nutrient absorbing follicles in the stomach lining when gluten is introduced to the body. Over time a person can become malnourished which in turn can cause ulcers of both the mouth and stomach. Repeated mouth ulcers was what prompted my doctor to do a coeliac test.

The symptoms of coeliacs are hard to notice and doctors struggle to diagnose it (favouring the diagnosis of Irritable Bowel Syndrome (IBS)). Many people have coeliacs and dont realise they have it. Statistics show that as many as 1 in 100 people have the disease.

Check out this website www.coeliac.co.uk and if you think you suffer from these symptoms then please go and see a doctor and raise the issue.

Untreated coeliacs disease can lead to a number of problems such as osteoporosis and intestinal cancer.
Chris 23 August 08
I have symptoms of gluten intollerance but according to my blood test I am ok. Wheat is somehow problematic to the digestive system as are other things, and these problems can cause mouth ulcers. I too went on Atkins and had great results, but at the time did not suffer from our little friends.
I think the rule of thumb is to have mercy on your digestive system and give it a hand when possible.
George 13 August 08
used to get nasty mouth ulcers once or twice a year. ones that last 7 to10 days. iwent to nutritionist told her. she thought my gut flora that is good/bad bacteria balance was wrong.she suggested a probiotic pill basically a pill version of probiotic yoghurts .not had ulcer for nearly two years.it can,t be a co incidence.try it people it may work. not sure if ican say name of pill on website.
tony 3 August 08
Thanks TomF for your advice but the gluten free diet was a long shot, as the ulcers stopped when I went on a carb free diet last year. It hasn't helped - at the moment I have a big ulcer on the tip of my tongue, one on the side and a huge one in my cheek. Every time I have to answer the phone at work, I'm lisping and drooling. I ought to have shares in Bonjela. It's the only thing that gets me through and the only way I can eat is to lather myself up beforehand. It says 'apply every four hours'. I'm lucky if I last one hour! Must get some of this Boots Mouth Ulcer Treatment. I bought something similar from the shop on this site. It's a hollow cotton bud filled with purple liquid and when you snap the top of the bud, the liquid is absorbed into the end and you apply it. It worked on one I had under my tongue but not on the one on top of my tongue. A big slit appeared and it was actually worse. The whole area turned white and it was a bit scary. While I was ulcer free on the carb free (Atkins type) diet, I also gave up sugar, tea and coffe and significantly cut down my alcohol intake. As the gluten free experiment didn't work, I suppose I should do a kind of elimination diet - what a bore! These bloomin ulcers are a nightmare!
Sarah Westwell 10 July 08
The possible effects of Celiac or Coeliac Disease are pretty serious. If you are gluten-intolerant because of the Disease, and continue eating gluten, you could end up with lymphoma.
TomF 27 June 08
this is an interesting idea to me. I have never been diagnosed with food allergies (but have many airborne allergies...perhaps another link to look in to), but my brother has been diagnosed with Celiac disease. I have never been a big bread or ceral person, however, so I am not sure I have enough in my diet--after looking it up on line--to make a difference. I have been trying to get my hands on a copy of an old book called, Eat Right 4 Your Body Type. I am wondering if there is a genetic component. This book contends that people with different blood types should eat different types of diets for weight maintenance. Could it be the same thing for overall health (and these stupid mouth ulcers)?
Holly 26 June 08
I'm in my third week of religiously following a gluten free diet and so far so good. I had a few ulcers when I started and they have healed. I have a small one on my tongue at the moment and I had one in my cheek but it went after a couple of days and didn't develop into a full blown nasty. I intend to keep it up and give it a couple of months - it's hard because I make my own bread and have to resist. Rice cakes are my staple breakfast, smothered in butter and honey so no weight loss like Fran! I'll keep you posted if it works for me
Sarah Westwell 24 June 08
I've found that too. After a private blood test, I cut out wheat and gluten, which resulted in me losing a little weight and no ulcers at all, but the moment I can't resist nice crusty bread, they come back.
I'm going back to my doctor (who says ulcers are just cause by a virus - what, a 25 year lasting virus with no other symptoms???!) and not I'm not going to be fobbed off, and I'm telling him about this wheat/gluten thing and see if there's anything else the nhs can do.
Fran 23 June 08
Last year I went on a carb free diet (which excluded wheat products, obviously) and I didn't get one ulcer in months. Of course, I lapsed and now eat wheat again but having been a sufferer for years ( I can barely speak or eat at the moment), I can't put the respite from ulcers down to anything else. I wish I was strong enough not to eat bread any more. There must be something in it.
Sarah Westwell 3 June 08
I myself also suffer from mouth ulcers currently trying a gluten free diet.
kj 30 May 08
I suffered in my teens terribly from mouth ulcers. I chanced upon a friend who told me that he too had terrible ulcers until he himself heard from his friend who also suffered from them that he went to have a blood test which showed that he was allergic to gluten. He stopped eating all products with gluten in and they disappeared! My friend went and had this blood test and he too was found to be allergic to gluten. He too stopped eating all foods with gluten in and has not suffered from mouth ulcers since! I tried a gluten free diet, but it did not help! I thought this bit of information might be usefull to someone and I'd love to hear any comments on this! (dovidrutenberg@yahoo.co.uk)
David Rutenberg 30 March 08

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Gluten allergy may be cause for continued mouth ulcers

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